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Registryoperationalinfo
Wu_req_form_requireNo
uoidION-4596
Work_scheduleMonday - Friday
Wu_req_patient_requirYes
Prelim_search_reqNo
Post_direct_contactYes, two years after transplantation if both parties consent
Donor_ID_exampleFor ION-9935: INBMST12A003456, for ION-1574: CLDKM123456
orgnameDKMS Registry
Registry_closures01/01/2016; 01/06/2016; 03/25/2016; 03/28/2016; 05/01/2016; 05/05/2016; 05/16/2016; 05/26/2016; 10/03/2016; 11/01/2016; 12/25/2015; 12/26/2016
Time_zoneEurope/Amsterdam (GMT+01:00)
Post_anony_contactYes, after transplantation
Subsequent_donationSubsequent donations are in principle possible, but will be evaluated individually
Ext_type_reqNo
Ext_type_optionStandard: HLA-A, -B, -C, -DRB1, -DQB1, -DPB1; Upon request: HLA-DRB3/4/5, -DQA1, -DPA1, KIR, CCR5, HLA-E and MICA/-B
Verif_days_reserved90 days
Business_hours8:00 AM to 5:00 PM
Post_gift_excYes, if with low economic value one gift per donor or recipient. No waiting period post transplant, value max 20€
Post_cbb_contactn/a
Sibling_typeYes
Wu_idm_completeYes
Wu_req_limit_dosThe dosage limit for BM workup is 5*10^8 cells/kg and for PBST workup 5*10^6 cells/kg. If higher amounts of cells are required, a reason needs to be given on the workup formsHSC apheresis: CD34+ cell from 1.5 to 5 x 10^6 / kg bodyweight of the recipient; HSC bone marrow: TNC from 3 to 5 x 10^8 / kg bodyweight of the recipient. he collection of TNC is limited, as only 20 ml bone marrow / kg bodyweight of the donor and max. 1500 ml can be collected.
Verif_reqNo
Verif_req_max_vol50 ml
Sibling_procedureSend documents to familydonors@dkms.org
Organisation_closures1st January, 6th January, 1st May, 3rd October, 1st November, 24th December, 25th December, 26th December, 31st December
Wu_req_ext_pat_infoAge, gender, diagnosis, blood group. For compasionate therapy an ethical review board approval is required and the medical advisor need to approve it.
Verif_idm_completeYes