Organisation definitions

To facilitate the exchange of information and to improve business relations, WMDA provides access to contact data of organisations that are listing donors or cord blood products in the global database of Search & Match Service (formerly BMDW). The following information is available:

Type of organisationOrganisation definitions	Data available	Maintained by appointed organisation profile administrator appointed by the organisation
DR → Donor Registry Definitions as set out in WMDA Standards (version January 1, 2020): An organisation responsible for coordination of the search for hematopoietic stem cells from donors unrelated to the potential recipient. The patient registry or requesting registry is the registry that acts on behalf of their transplant centres. The donor registry or providing registry is the registry that provides the hematopoietic stem cell product.	Contact details Operational information Regulatory survey* Documents (e.g. price lists) Personal data only available for WMDA members after login	Personal data can be added or deleted by the organisation profile administrator by filling in a request form. The contact details are updated automatically from the WMDA address database. The operational information, regulatory requirements information and (member) documents are updated by the organisation profile administrator
CBB → Cord Blood Bank Definitions as set out in WMDA Standards (version January 1, 2020): A facility responsible for donor management and the collection, processing, testing, cryopreservation, storage, listing, reservation, release, and distribution of cord blood units.	Contact details If the CBB is a listing organisation the following data is also available: Cord Blood Bank survey Documents (e.g. forms, price lists) Personal data only available for WMDA members after login	Personal data can be added or deleted by the organisation profile administrator by filling in a request form. The contact details are updated automatically from the WMDA address database. The (member) documents  and cord blood bank operational and technical information are updated by the organisations.  → In case a cord blood bank is missing, it is possible to provide this information. Please contact the WMDA office (mail@wmda.info) and ask for the linkWMDA to set up the webpages of this cord blood bank.
DR with CBU → Donor Registry that lists both donors and cords that directly provides cord blood units and hematopoietic stem cell (without collaboration with a registry)cords	Contact details Operational information Regulatory survey* Documents (e.g. price lists) Personal data only available for WMDA members after login	Personal data can be added or deleted by the organisation profile administrator by filling in a request form. The contact details are updated automatically from the WMDA address database. The operational information, regulatory requirements information and (member) documents are updated by the organisation profile administrator
DC → Donor Centre Definition as set out in WMDA Standards (version January 1, 2020): An organisation responsible for donor recruitment, consenting, testing, management and the collection of donor personal, genetic, medical data.	Contact details Operational information
TC → Transplant Centre

Data available

* Regulatory Questionnaire import practices EU Member States

The EU has a common set of standards to ensure the quality and safety of:

• Organs for transplantation, and
• tissues and cells for human use, including reproductive cells

For EU registries to import cells into a EU Member State, the EU Member States must be able to ensure that cells imported under their licences meet the quality and safety requirements set out in the EU tissues and cells Directive 2004/23/EC and its implementing Directives, including 2006/17/EC and 2006/86/EC.

This questionnaire will be sent out in 2019.

Roles defined

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