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Table of contents

Table of Contents




Information available for organisation types

To facilitate the exchange of information and to improve business relations, WMDA provides access to contact data of organisations that are listing donors or cord blood products in the global database of Search & Match Service (formerly BMDW).

The following information is available:

Type of organisationData availableSourcesMaintained by

Listing Organisations (DR)


Defined as:

An organisation listing donors and cord blood products in the Search & Match Service directly or through another organisation and that has a registered ION. A listing organisation is not a donor registry as defined in the WMDA Standards.




Contact details

Operational information

Regulatory requirements information (including import- and export requirements)

Documents

Personal data only available for WMDA members after login

WMDA address database


Listing organisation

The contact details are updated automatically from the WMDA address database.

The operational information, regulatory requirements information and documents are updated by the listing organisations. Each organisation has identified a registry an organisation profile administrator who is responsible for updating the information.

Personal data can be added or deleted by the registry organisation profile administrator by filling in a request form.

Cord Blood Banks (DRCBB) listing directly their cord blood products in the Search & Match Service.


Defined as:

A cord blood bank listing directly cord blood products in Seach & Match Service (not affiliated with a registry)

Contact details

Operational information

Regulatory requirements information (including import- and export requirements)

Documents

Personal data only available for WMDA members after login

WMDA address database


Cord Blood Bank

The contact details are updated automatically from the WMDA address database.


The operational information, regulatory requirements information and documents are updated by the listing organisations. Each organisation has identified a registry an organisation profile administrator who is responsible for updating the information.

Personal data can be added by the registry organisation profile administrator by filling in a request form.

Cord Blood Banks affiliated with a registry (CBB)

Contact details

Cord Blood Bank Information (Technology Survey)

Personal data only available for WMDA members after login

WMDA database

CBB Survey 2015

The contact details are updated automatically from the WMDA address database.

Cord Blood Banks have provided their information in January/February 2015. In case a cord blood bank is missing, it is possible to provide this information. Please contact the WMDA office (mail@wmda.info) and ask for the link.

In 2018 the information will be updated.

Personal data can be added by the registry organisation profile administrator by filling in a request form.



Excerpt

Organisations identify



Organisations are identified as follows

  • Listing organisations have an ION (Issuing Organisation Number): a globally unique identifier, as issued by ICCBBA, which maintains the authorative list of ION's. All organisations with an ION are listing donors and/or cord blood units in the global database Search & Match Service.
  • All other organisations without an ION are referenced by their WO number, as used by the WMDA internally.


FunctionDescriptionNumber per registryAccess to WMDA ShareCost implications
Primary Emergency Contact

Only accessible for WMDA members, primary contact point that can be contacted by WMDA members in case of emergency (e.g. workup cancellation, transport problems)

This contact is for information purposes only and does not fulfill a specific role within WMDA.

1NoneNone
Secondary Emergency Contact

Only accessible for WMDA members, second contact point that can be contacted by WMDA members in case of emergency (e.g. workup cancellation, transport problem) in case the primary contact does not respond

This contact is for information purposes only and does not fulfill a specific role within WMDA.

1NoneNone
Organisation Profile AdministratorOnly accessible for WMDA members, person responsible for maintaining the registry organisation profile page on WMDA Share (address, contact person, operational information, regulatory information).Multiple Has edit rights to organisational profile on WMDA Share.None
WMDA registry representativeOnly accessible for WMDA members, person eligible to serve as the WMDA organisational representative and to vote on behalf of the organisation.1Access to WMDA ShareIncluded in WMDA membership fee
Medical director

Only accessible for WMDA members, medical director

This contact is for information purposes only and does not fulfill a specific role with the WMDA.

1NoneNone
Search coordinator

Only accessible for WMDA members, search coordinator

This contact is for information purposes only and does not fulfill a specific role with the WMDA.

MultipleNoneNone
S(P)EAR alert contactOnly accessible for WMDA members, person who will receive the rapid alerts from the S(P)EAR Committee.MultipleNoneNone
WMDA member - free of chargeOnly accessible for WMDA members, persons who are appointed by the registry to serve as a WMDA member (there is a maximum of persons a registry can appoint, based on the number of donors/cord blood units listed).LimitedAccess to WMDA ShareIncluded in WMDA membership fee
Additional WMDA memberOnly accessible for WMDA members, persons who are appointed by the registry to serve as a WMDA member (above the maximum of persons).MultipleAccess to WMDA ShareAnnual fee
WMDA annual reportOnly accessible for WMDA members, persons who are appointed by the registry to fill in the WMDA Annual Questionnaire.1Annual questionnaire web applicationNone
Search & Match Registry UserOnly accessible for WMDA members, person who will have access to the Search & Match Service.MultipleSearch & Match ServiceEach user incurs a fee charged to the registry
IT expert for data submissionOnly accessible for WMDA members, person who is responsible for the data upload to the Search & Match Service.1NoneNone



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  • The "Share" feature allows you to send the page to desired people
  • The "…" feature allows you to export certain pages on the space to printable documents
  • For registered users (WMDA members) additional/restricted information may be accessed by clicking on

Permissions

  • This page is publicly visible
  • Editing is restricted to the organisation profile administrators
  • Editing is further restricted on page level to specific persons (record owners) 

Information about and for the organisation profile administrator

It is each organisations designated organisation profile administrator's responsibility to ensure all information displayed for their organisation is accurate at all times. By compiling, this resource will be a valuable tool for patients, donors, and organisations worldwide.

Type of Edit

Title of Tables/Page

Action for editing

Editable by user on page

Operational information, regulatory requirements information and documents

Follow instructions in Helpful Tips document

Not editable by user on page

Contact details, registry information, affiliated organizations, emergency contact, persons and functions, registry closures on main calendar, CBB survey

Must use ‘Edit’ button found on registry page main page by clicking key symbol in additional resource title

Any omissions, errors or corrections can be communicated by email to mail@wmda.info



Disclaimer

The WMDA makes no representations or express or implied warranties regarding any information on this site or obtained through these links; expressly disclaims all legal liability and responsibility for the accuracy, completeness, currency, suitability, validity, or usefulness of such information; and is not and will not be liable for any statements, errors, or omissions in posted information, or for any losses, injuries, or damages that arise or are alleged to arise from such information. Use of any information provided on this site does not and is not intended to create a contractual or other relationship.  All information is on an as-is basis. All rights are reserved to remove any information posted on the site.
You may not conduct any systematic or automated data collection activities (including without limitation scraping, data mining, data extraction and data harvesting) on or in relation to our website without our express written consent.
You may not access or otherwise interact with our website using any robot, spider or other automated means, or violate the directives set out in the robots.txt file for our website.
You may not use data collected from our website for ANY (direct) marketing activity.

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