Ensure that the rights and safety of stem cell donors are promoted and protected.

 Overview of leadership of the pillar can be found here.

 
  • Lessons learned from adverse events and reactions inform donor care standards and practices and are reflected in the WMDA Standards.

  • The experiences and needs of donors are understood and communicated and reflected in donor care standards.

  • WMDA is recognised as a global advocate for donor care.
  • Transplant centre staff, working with donors, have access to high-quality training.
  • WMDA members adopt standards, protocols and procedures that safeguard the rights and safety of donors.
  • National and international authorities support stem cell donation and recognise donor care standards.  
  • Update and promote donor care standards that reflect evidence, best practice and ethical considerations.
    Examples: make standards relevant to both related and unrelated donors; triennial review of mobilising agents guidelines (G-CSF)
    Example: develop and maintain guidelines in relation to donor consent/counselling
  • Collect, analyse and report data relating to adverse events and reactions and share insight with members and regulatory authorities.  Example:  roll out new and improved online SEAR/SPEAR reporting system for both related and unrelated adverse events and reactions
  • Improve, maintain and promote WMDA’s Donor Medical Suitability Wiki.  Example: respond to infectious diseases outbreaks (e.g. Zika); expand Wiki to include the screening of cord blood donors.
  • In collaboration with transplant societies ensure that a professional training programme for transplant centre staff working with donors is available.
  • Help WMDA members to inform and influence national and international authorities and other stakeholders (e.g. WBMT EBMT), so that voluntary stem cell donation and donor care is supported.
  • Celebrate the contribution made by donors.  Example:  World Marrow Donor Day
  • Explore the role of WMDA in relation to research involving donors  Example:  develop ethical principles and guidelines and explore possibility to maintain a register of donor research dissemination research findings.