Aim of the pillar
Ensure that the rights and safety of stem cell donors are promoted and protected.
What are the positive changes we expect to see as a result of our activities, which will contribute to our intended impact?
What will WMDA and its members do?
- Update and promote donor care standards that reflect evidence, best practice and ethical considerations.
Examples: make standards relevant to both related and unrelated donors; triennial review of mobilising agents guidelines (G-CSF)
Example: develop and maintain guidelines in relation to donor consent/counselling - Collect, analyse and report data relating to adverse events and reactions and share insight with members and regulatory authorities. Example: roll out new and improved online SEAR/SPEAR reporting system for both related and unrelated adverse events and reactions
- Improve, maintain and promote WMDA’s Donor Medical Suitability Wiki. Example:respond to infectious diseases outbreaks (e.g. Zika); expand Wiki to include the screening of cord blood donors.
- In collaboration with transplant societies ensure that a professional training programme for transplant centre staff working with donors is available.
- Help WMDA members to inform and influence national and international authorities and other stakeholders (e.g. WBMT EBMT), so that voluntary stem cell donation and donor care is supported.
- Celebrate the contribution made by donors. Example: World Marrow Donor Day
- Explore the role of WMDA in relation to research involving donors Example: develop ethical principles and guidelines and explore possibility to maintain a register of donor research dissemination research findings.