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Initiated in 1992 as a European Union Project in the 3rd Framework Programme "Advanced Informatics in Medicine (AIM)", the European Marrow Donor Information System (EMDIS) has become the standard platform for computer-based registry communication today.

The aim of EMDIS is to establish a single virtual international donor registry allowing search coordinators to get the same information and services on international donors as accurately, timely and easily as from their own national donors. The scope of operation covers all aspects of an unrelated donor search from the preliminary search to the donor workup. Technically, EMDIS defines an open specification of a protocol for the electronic communication among registries. Therefore, EMDIS is implemented as an asynchronous peer-to-peer network connecting distributed, heterogeneous databases. Membership of EMDIS is free of charge. The community provides documentation, status information, software tools, support and a project management platform.

References:

Maiers M. Information technology and the role of WMDA in promoting standards for international exchange of hematopoietic stem cell donors and products. Bone Marrow Transplant. 2010 May;45(5):839-42.
Müller CR. Computer applications in the search for unrelated stem cell donors. Transpl Immunol 2002; 10: 227–240.
Baouz A, Raffoux C. EMDIS: European Marrow Donor Information System. Comput Methods Programs Biomed 1994; 45: 45–46.

 


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Contact:
Anthony Montague
Vacant (Chair EMDIS User Group)
Jason Dehn (Vice Chair EMDIS User Group) (Acting Chair)
David Steiner (Chair EMDIS Technical Group)
Andrea Timm (Vice Chair EMDIS Technical Group)