Introduction

The World Marrow Donor Association ( hereafter “WMDA” ) is a non-profit association organised under the laws of The Netherlands, having its registered office at Schipholweg 57, 1st floor, unit 2, 2316 ZL, The Netherlands.

Considerations

• You are an individual who is interested in the field of haematopoietic stem cell donation and transplantation and wish to benefit from the informational and educational activities of WMDA on the basis of a financial contribution (membership fee) and, to that end, become a member of WMDA.
• In order to become a member, you are requested to supply WMDA with certain personal information via an online application form. Information marked with an asterisk (*) is mandatory; all other information is optional.
• By completing the application form, you state that all information supplied by you or somebody instructed by you on your behalf is true and correct.
• By completing the application form, you also agree to engage in professional online conduct towards WMDA and its members by refraining from sending unsolicited messages to groups of other website users, and by respecting intellectual property rights owned by WMDA and third parties.
• By completing the application form, you agree to pay the required membership fee. An annual membership covers January 1 till December 31 and is renewable each membership year.
• The annual membership fee is communicated via the WMDA website and by email and is due in January at the start of the new membership year. After April 1, the grace period for current members comes to an end and all non-renewed accounts are voided of their membership benefits.
• Any change in the membership fee as adopted by the WMDA General Assembly will be communicated via the WMDA website and by email.
• After submitting the application form to WMDA, your application will be reviewed. If approved, a confirmation letter will be sent to you, including the request to complete your membership payment. Once you have completed the payment online or via bank transfer and WMDA has received the payment of your membership fee, your membership and your access to the member benefits will be activated.

Member Rights and Obligations

Healthcare Affiliated Professionals & Honorary Members

WMDA requests you to supply (and where needed, to update) the following information:

• Name, address and contact details
• Gender, title preferred
  
• Job title
  

It is the member’s responsibility at all times to keep personal information up to date. WMDA is not responsible for verifying or updating any of the information. Additional personal information may be requested to help identification, communication, or qualification for specific activities.

Organisations

Regular and provisional members are donor registries, cord blood banks, donor centres that wish to benefit from the informational and educational activities of WMDA on the basis of a financial contribution . One appointed Representative of the Organisation may attend the General Assembly and exercise the membership rights granted as outlined in the WMDA bylaws (article 4.1). The WMDA member organisation must provide the WMDA office with:

• Name, address and contact details;

• Information about the organisation in order to be able to list donors and/or cord blood units for international search;
  

• Name and address of the proposed representative;

• Name and contact details of persons who will get access to the WMDA services and that will be registered as WMDA individual member.
  

It is the responsibility of the member organisation to keep their personal information up to date. WMDA is not responsible for verifying or updating any of the information. Additional personal information may be requested to help identification, communication, or qualification for specific activities.

All WMDA members have the right to nominate candidates for elections of the WMDA Board & Standing Committees.

Individual and Organisational members must pay an annual contribution fee, the amount and the conditions of which will be approved by the General Assembly. Honorary members are exempt from paying contributions.

Benefits of membership

1. The designated organisational representative (or a proxy) is the only individual eligible to cast votes on behalf of the organisation. Number of votes per organisation are described in the bylaws (article 4.1). An organisation may change its representative at any time by sending an official communication from the management of the registry to the WMDA.
2. Staff members of regular, provisional and aspirant member organisations can request access to the Search & Match Service of WMDA.
3. A transplant centre coordinator or physician employed by a transplant centre or by an organisation to conduct searches on behalf of a transplant centre can obtain access to the Search & Match Service of WMDA if they have been approved by a WMDA member registry or by the WMDA Board.  

WMDA Obligations

WMDA shall have the following obligations during the term of this Agreement:

• WMDA will use its best efforts to act according to WMDA Bylaws and the European General Data Privacy Regulations when processing personal data of members.
• The Association will protect the personal data provided in the membership registration form and thereafter, and will use its best efforts to prevent unlawful sharing of personal data with third parties if this is not essential to the execution of the membership benefits or other core business of the Association;
• The Association will set up or establish processors’ agreements with all third parties that need access to membership data;
• In case of a data breach, including hacking or loss of data, WMDA will, according to the General Data Privacy Regulations (GDPR), inform members of this within 72 hours;

Term and Termination

Membership is terminated:

• By written notification of termination by the member to the WMDA office;

• On the death of an Individual or Honorary member or on the dissolution of a member.

For a more detailed overview of grounds for termination of Membership please see the WMDA bylaws, article 6.

Applicable law

This agreement shall be governed by the laws of The Netherlands. Any dispute that may arise shall be submitted to the exclusive jurisdiction of the courts in Den Haag, The Netherlands.

Other

• This Agreement and the obligations of WMDA and the member may not be assigned, transferred or delegated by one party without prior written consent of the other parties;
• WMDA may conduct surveys about issues that are of interest to WMDA or the professional field of haematopoietic stem cell donation and transplantation. The respondent’s data provided in such surveys shall remain anonymous and will be treated confidentially unless specified in the survey;
• WMDA may perform statistical analysis of website traffic and response to product offers in order to improve its services. Statistical information arising from such statistical analysis shall not be reducible to individual users;
• WMDA may perform statistical analysis of information submitted by members (e.g., renewal rate, congress attendance) in order to develop and further improve services to our members;
• WMDA is the sole owner of the WMDA website and is therefore the sole owner of any data collected through the WMDA website, notwithstanding the applicant’s individual rights under this agreement.

Any queries related to this agreement may be directed towards the WMDA office, Schipholweg 57, 1st floor, unit 2, 2316ZL Leiden, +31 (0) 88 505 7900, mail@wmda.info