⚠Due to planned maintenance you will experience short (<30 min) downtime between 08:00 - 08:30 CET.
Organisation definitions
Organisation definitions
To facilitate the exchange of information and to improve business relations, WMDA provides access to contact data of organisations that are listing donors or cord blood products in the global database of Search & Match Service (formerly BMDW). The following information is available:
Organisation definitions | Data available | Maintained by appointed organisation profile administrator |
---|---|---|
DR → Donor Registry Definitions as set out in WMDA Standards (version January 1, 2020): An organisation responsible for coordination of the search for hematopoietic stem cells from donors unrelated to the potential recipient.
|
|
|
CBB → Cord Blood Bank Definitions as set out in WMDA Standards (version January 1, 2020): A facility responsible for donor management and the collection, processing, testing, cryopreservation, storage, listing, reservation, release, and distribution of cord blood units. |
|
→ In case a cord blood bank is missing, it is possible to provide this information. Please contact the WMDA office (mail@wmda.info) and ask WMDA to set up the webpages of this cord blood bank. |
DR with CBU → Donor Registry that lists both donors and cords |
|
|
DC → Donor Centre Definition as set out in WMDA Standards (version January 1, 2020): An organisation responsible for donor recruitment, consenting, testing, management and the collection of donor personal, genetic, medical data. |
| |
TC → Transplant Centre |
Data available
* Regulatory Questionnaire import practices EU Member States
The EU has a common set of standards to ensure the quality and safety of:
- Organs for transplantation, and
- tissues and cells for human use, including reproductive cells
For EU registries to import cells into a EU Member State, the EU Member States must be able to ensure that cells imported under their licences meet the quality and safety requirements set out in the EU tissues and cells Directive 2004/23/EC and its implementing Directives, including 2006/17/EC and 2006/86/EC.
This questionnaire will be sent out in 2019.
Roles Defined
Roles defined
- Listing organisations or donor centres (if approved by the registry) have an ION (Issuing Organisation Number): a globally unique identifier, as issued by ICCBBA, which maintains the official list of ION's.
- All other organisations without an ION are referenced by their WO number, as used by the WMDA internally.
Function | Information presented on WMDA Share | Access to |
---|---|---|
Primary Emergency Contact | Only accessible for WMDA members, primary contact point that can be contacted by WMDA members in case of emergency (e.g. work-up cancellation, transport problems) | |
Secondary Emergency Contact | Only accessible for WMDA members, second contact point that can be contacted by WMDA members in case of emergency (e.g. work-up cancellation, transport problem) in case the primary contact does not respond | |
Organisation Profile Administrator | Only accessible for WMDA members, person responsible for updating the registry and/or cord blood information on WMDA Share (address, contact person, operational information, regulatory information, cord blood operational information, cord blood technical information). | Responsible for updating operational and regulatory information |
WMDA voting member | Only accessible for WMDA members, person eligible to serve as the WMDA organisational representative and to vote on behalf of the organisation. | |
Medical director | Only accessible for WMDA members, medical director | None |
Search coordinator | Only accessible for WMDA members, search coordinator | None |
S(P)EAR alert contact | Only accessible for WMDA members, person who will receive the rapid alerts from the S(P)EAR Committee. | None |
WMDA member | Only accessible for WMDA members, persons who are appointed by the WMDA member organisation to serve as a WMDA member | Access to WMDA Share |
WMDA global trend report | Only accessible for WMDA members, persons who are appointed by the WMDA member organisation to fill in the WMDA Global Trend Report (annual questionnaire) | Access to annual questionnaire web application |
Search & Match Registry Registry User | Only accessible for WMDA members, person who will have access to the Search & Match Service. | Access to Search & Match Service |
IT expert for data submission | Only accessible for WMDA members, person who is responsible for the data upload to the Search & Match Service. | Access to data upload facilities of WMDA |
Navigation tips
Helpful Navigation Tips
- The "Watch" feature can be clicked for a space which allows automatic emails to be sent to your address notifying you when information has been edited.
- The "Share" feature allows you to send the page to desired people
- The "…" feature allows you to export certain pages on the space to printable documents
- For registered users (WMDA members) additional/restricted information may be accessed by clicking on
Profile administrator
Responsibilities organisation profile administrator
It is each organisations designated organisation profile administrator's responsibility to ensure all information displayed for their organisation is accurate at all times. By compiling, this resource will be a valuable tool for patients, donors, and organisations worldwide.
Type of Edit | Title of Tables/Page | Action for editing |
Editable by user on page | Operational information, regulatory requirements information and documents | Please read more details, here. |
Not editable by user on page | Contact details, registry information, affiliated organizations, emergency contact, persons and functions, registry closures on main calendar, CBB survey | Must use ‘Edit’ button found on registry page main page by clicking key symbol in additional resource title |
Disclaimer
WMDA makes no representations or express or implied warranties regarding any information on this site or obtained through these links; expressly disclaims all legal liability and responsibility for the accuracy, completeness, currency, suitability, validity, or usefulness of such information; and is not and will not be liable for any statements, errors, or omissions in posted information, or for any losses, injuries, or damages that arise or are alleged to arise from such information. Use of any information provided on this site does not and is not intended to create a contractual or other relationship. All information is provided on an as-is basis. All rights are reserved to remove any information posted on the site.
You may not conduct any systematic or automated data collection activities (including without limitation scraping, data mining, data extraction and data harvesting) on or in relation to our website without our express written consent.
You may not access or otherwise interact with our website using any robot, spider or other automated means, or violate the directives set out in the robots.txt file for our website.
You may not use data collected from our website for ANY (direct) marketing activity.