To facilitate the exchange of information and to improve business relations, WMDA provides access to contact data of organisations that are listing donors or cord blood products in the global database of Search & Match Service (formerly BMDW). The following information is available:
|Organisation definitions||Data available||Maintained by appointed organisation profile administrator|
DR → Donor Registry
Definitions as set out in WMDA Standards (version January 1, 2020): An organisation responsible for coordination of the search for hematopoietic stem cells from donors unrelated to the potential recipient.
CBB → Cord Blood Bank
Definitions as set out in WMDA Standards (version January 1, 2020): A facility responsible for donor management and the collection, processing, testing, cryopreservation, storage, listing, reservation, release, and distribution of cord blood units.
→ In case a cord blood bank is missing, it is possible to provide this information. Please contact the WMDA office (firstname.lastname@example.org) and ask WMDA to set up the webpages of this cord blood bank.
|DR with CBU → Donor Registry that lists both donors and cords|
DC → Donor Centre
Definition as set out in WMDA Standards (version January 1, 2020): An organisation responsible for donor recruitment, consenting, testing, management and the collection of donor personal, genetic, medical data.
|TC → Transplant Centre|
* Regulatory Questionnaire import practices EU Member States
The EU has a common set of standards to ensure the quality and safety of:
- Organs for transplantation, and
- tissues and cells for human use, including reproductive cells
For EU registries to import cells into a EU Member State, the EU Member States must be able to ensure that cells imported under their licences meet the quality and safety requirements set out in the EU tissues and cells Directive 2004/23/EC and its implementing Directives, including 2006/17/EC and 2006/86/EC.
This questionnaire will be sent out in 2019.
- Listing organisations or donor centres (if approved by the registry) have an ION (Issuing Organisation Number): a globally unique identifier, as issued by ICCBBA, which maintains the official list of ION's.
- All other organisations without an ION are referenced by their WO number, as used by the WMDA internally.
|Function||Information presented on WMDA Share||Access to |
|Primary Emergency Contact|
Only accessible for WMDA members, primary contact point that can be contacted by WMDA members in case of emergency (e.g. work-up cancellation, transport problems)
|Secondary Emergency Contact|
Only accessible for WMDA members, second contact point that can be contacted by WMDA members in case of emergency (e.g. work-up cancellation, transport problem) in case the primary contact does not respond
|Organisation Profile Administrator||Only accessible for WMDA members, person responsible for updating the registry and/or cord blood information on WMDA Share (address, contact person, operational information, regulatory information, cord blood operational information, cord blood technical information).||Responsible for updating operational and regulatory information|
|WMDA voting member||Only accessible for WMDA members, person eligible to serve as the WMDA organisational representative and to vote on behalf of the organisation.|
Only accessible for WMDA members, medical director
Only accessible for WMDA members, search coordinator
|S(P)EAR alert contact||Only accessible for WMDA members, person who will receive the rapid alerts from the S(P)EAR Committee.||None|
|WMDA member||Only accessible for WMDA members, persons who are appointed by the WMDA member organisation to serve as a WMDA member ||Access to WMDA Share|
|WMDA global trend report||Only accessible for WMDA members, persons who are appointed by the WMDA member organisation to fill in the WMDA Global Trend Report (annual questionnaire)||Access to annual questionnaire web application|
|Search & Match Registry Registry User||Only accessible for WMDA members, person who will have access to the Search & Match Service.||Access to Search & Match Service|
|IT expert for data submission||Only accessible for WMDA members, person who is responsible for the data upload to the Search & Match Service.||Access to data upload facilities of WMDA|
Helpful Navigation Tips
- The "Watch" feature can be clicked for a space which allows automatic emails to be sent to your address notifying you when information has been edited.
- The "Share" feature allows you to send the page to desired people
- The "…" feature allows you to export certain pages on the space to printable documents
- For registered users (WMDA members) additional/restricted information may be accessed by clicking on
Responsibilities organisation profile administrator
It is each organisations designated organisation profile administrator's responsibility to ensure all information displayed for their organisation is accurate at all times. By compiling, this resource will be a valuable tool for patients, donors, and organisations worldwide.
Type of Edit
Title of Tables/Page
Action for editing
Editable by user on page
Operational information, regulatory requirements information and documents
|Please read more details, here.|
Not editable by user on page
Contact details, registry information, affiliated organizations, emergency contact, persons and functions, registry closures on main calendar, CBB survey
Must use ‘Edit’ button found on registry page main page by clicking key symbol in additional resource title
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