Skip to end of metadata
Go to start of metadata
Organisation definitions

Organisation definitions

To facilitate the exchange of information and to improve business relations, WMDA provides access to contact data of organisations that are listing donors or cord blood products in the global database of Search & Match Service (formerly BMDW). The following information is available:

Organisation definitionsData availableMaintained by appointed organisation profile administrator

DR → Donor Registry

Definitions as set out in WMDA Standards (version January 1, 2020): An organisation responsible for coordination of the search for hematopoietic stem cells from donors unrelated to the potential recipient.

  • The patient registry or requesting registry is the registry that acts on behalf of their transplant centres.
  • The donor registry or providing registry is the registry that provides the hematopoietic stem cell product.
  • Contact details
  • Operational information
  • Regulatory survey*
  • Documents (e.g. price lists)
  • Personal data only available for WMDA members after login
  • Personal data can be added or deleted by the organisation profile administrator by filling in a request form. The contact details are updated automatically from the WMDA address database.
  • The operational information, regulatory requirements information and (member) documents are updated by the organisation profile administrator

CBB → Cord Blood Bank

Definitions as set out in WMDA Standards (version January 1, 2020): A facility responsible for donor management and the collection, processing, testing, cryopreservation, storage, listing, reservation, release, and distribution of cord blood units. 

  • Contact details
  • If the CBB is a listing organisation the following data is also available:
    • Cord Blood Bank survey
    • Documents (e.g. forms, price lists)
    • Personal data only available for WMDA members after login
  • Personal data can be added or deleted by the organisation profile administrator by filling in a request form. The contact details are updated automatically from the WMDA address database.
  • The (member) documents  and cord blood bank operational and technical information are updated by the organisations. 

→ In case a cord blood bank is missing, it is possible to provide this information. Please contact the WMDA office (mail@wmda.info) and ask WMDA to set up the webpages of this cord blood bank.

DR with CBU → Donor Registry that lists both donors and cords
  • Contact details
  • Operational information
  • Regulatory survey*
  • Documents (e.g. price lists)
  • Personal data only available for WMDA members after login
  • Personal data can be added or deleted by the organisation profile administrator by filling in a request form. The contact details are updated automatically from the WMDA address database.
  • The operational information, regulatory requirements information and (member) documents are updated by the organisation profile administrator

DC → Donor Centre

Definition as set out in WMDA Standards (version January 1, 2020): An organisation responsible for donor recruitment, consenting, testing, management and the collection of donor personal, genetic, medical data.  

  • Contact details
  • Operational information


Data available

* Regulatory Questionnaire import practices EU Member States

The EU has a common set of standards to ensure the quality and safety of:

  • Organs for transplantation, and
  • tissues and cells for human use, including reproductive cells

For EU registries to import cells into a EU Member State, the EU Member States must be able to ensure that cells imported under their licences meet the quality and safety requirements set out in the EU tissues and cells Directive 2004/23/EC and its implementing Directives, including 2006/17/EC and 2006/86/EC.

This questionnaire will be sent out in 2019.

Roles Defined

Roles defined

  • Listing organisations or donor centres (if approved by the registry) have an ION (Issuing Organisation Number): a globally unique identifier, as issued by ICCBBA, which maintains the official list of ION's.
  • All other organisations without an ION are referenced by their WO number, as used by the WMDA internally.
FunctionInformation presented on WMDA Share
Access to
Primary Emergency Contact

Only accessible for WMDA members, primary contact point that can be contacted by WMDA members in case of emergency (e.g. work-up cancellation, transport problems)


Secondary Emergency Contact

Only accessible for WMDA members, second contact point that can be contacted by WMDA members in case of emergency (e.g. work-up cancellation, transport problem) in case the primary contact does not respond


Organisation Profile AdministratorOnly accessible for WMDA members, person responsible for updating the registry and/or cord blood information on WMDA Share (address, contact person, operational information, regulatory information, cord blood operational information, cord blood technical information).Responsible for updating operational and regulatory information
WMDA voting member
Only accessible for WMDA members, person eligible to serve as the WMDA organisational representative and to vote on behalf of the organisation.
Medical director

Only accessible for WMDA members, medical director

None
Search coordinator

Only accessible for WMDA members, search coordinator

None
S(P)EAR alert contactOnly accessible for WMDA members, person who will receive the rapid alerts from the S(P)EAR Committee.None
WMDA memberOnly accessible for WMDA members, persons who are appointed by the WMDA member organisation to serve as a WMDA member
Access to WMDA Share
WMDA global trend report
Only accessible for WMDA members, persons who are appointed by the WMDA member organisation to fill in the WMDA Global Trend Report (annual questionnaire)
Access to annual questionnaire web application
Search & Match Registry Registry UserOnly accessible for WMDA members, person who will have access to the Search & Match Service.Access to Search & Match Service
IT expert for data submissionOnly accessible for WMDA members, person who is responsible for the data upload to the Search & Match Service.Access to data upload facilities of WMDA

Navigation tips

Helpful Navigation Tips

  • The "Watch" feature can be clicked for a space which allows automatic emails to be sent to your address notifying you when information has been edited.
  • The "Share" feature allows you to send the page to desired people
  • The "…" feature allows you to export certain pages on the space to printable documents
  • For registered users (WMDA members) additional/restricted information may be accessed by clicking on
Profile administrator

Responsibilities organisation profile administrator

It is each organisations designated organisation profile administrator's responsibility to ensure all information displayed for their organisation is accurate at all times. By compiling, this resource will be a valuable tool for patients, donors, and organisations worldwide.

Type of Edit

Title of Tables/Page

Action for editing

Editable by user on page

Operational information, regulatory requirements information and documents

Please read more details, here.

Not editable by user on page

Contact details, registry information, affiliated organizations, emergency contact, persons and functions, registry closures on main calendar, CBB survey

Must use ‘Edit’ button found on registry page main page by clicking key symbol in additional resource title

Save


Disclaimer

WMDA makes no representations or express or implied warranties regarding any information on this site or obtained through these links; expressly disclaims all legal liability and responsibility for the accuracy, completeness, currency, suitability, validity, or usefulness of such information; and is not and will not be liable for any statements, errors, or omissions in posted information, or for any losses, injuries, or damages that arise or are alleged to arise from such information. Use of any information provided on this site does not and is not intended to create a contractual or other relationship.  All information is provided on an as-is basis. All rights are reserved to remove any information posted on the site.


You may not conduct any systematic or automated data collection activities (including without limitation scraping, data mining, data extraction and data harvesting) on or in relation to our website without our express written consent.
You may not access or otherwise interact with our website using any robot, spider or other automated means, or violate the directives set out in the robots.txt file for our website.
You may not use data collected from our website for ANY (direct) marketing activity.