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- Listing organisations have an ION (Issuing Organisation Number): a globally unique identifier, as issued by the ICCBBA, which maintains the authorative list of ION's. All organisations with an ION are listing donors and/or cord blood units in the global database Bone Marrow Donors Worldwide.
- All other organisations without an ION are referenced by their WO number, as used by the WMDA internally.
| Function | Description | Number per registry | Access to WMDA Share | Cost implications | ||||||
|---|---|---|---|---|---|---|---|---|---|---|
| Primary Emergency Contact | Only accessible for WMDA Members, primary contact point that can be contacted by WMDA members in case of emergency (e.g. workup cancellation, transport problems) This contact is for information purposes only and does not fulfil a specific role with the WMDA. | 1 | None | None | ||||||
| Secondary Emergency Contact | Only accessible for WMDA Members, second contact point that can be contacted by WMDA members in case of emergency (e.g. workup cancellation, transport problem) in case the primary contact does not respond This contact is for information purposes only and does not fulfil a specific role with the WMDA. | 1 | None | None | ||||||
| Organisation Profile Administrator | Only accessible for WMDA Members, person responsible maintaining the registry organisation profile page on WMDA Share (address, contact person, operational information, regulatory information) | Multiple permitted | Has edit rights to organisational profile on WMDA Share. | None | ||||||
| WMDA registry representative | Only accessible for WMDA Members, person eligible to serve as the WMDA organisational representative and to vote on behalf of the organisation | 1 | access to WMDA Share | Included in WMDA membership fee | ||||||
| Medical director | Only accessible for WMDA Members, medical director This contact is for information purposes only and does not fulfil a specific role with the WMDA. | 1 | None | None | ||||||
| Search coordinator | Only accessible for WMDA Members,, search coordinator This contact is for information purposes only and does not fulfil a specific role with the WMDA.
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| Mutliple | None | None | ||||||||
| S(P)EAR alert contact | Only accessible for WMDA Members, person who will receive the rapid alerts from the S(P)EAR Committee | Multiple | None | None | ||||||
| WMDA Professional member (affliated) | Only accessible for WMDA members, persons who are appointed by the registry to serve as a WMDA member (there is a maximum of persons a registry can appoint, based on the number of donors/cord blood units listed) | Limited | access to WMDA Share | Included in WMDA membership fee | ||||||
| WMDA additional professional member | Only accessible for WMDA members, persons who are appointed by the registry to serve as a WMDA member (above the maximum of person) | Multiple | access to WMDA Share | Euro 125 annually | ||||||
| WMDA annual report | Only accessible for WMDA members, persons who are appointed by the registry to fill in the WMDA Annual Questionnaire | 1 | annual questionnaire web application | None | ||||||
| BMDW Registry User | Only accessible for WMDA Members, person who will have access to BMDW Search & Match Service | Multiple | BMDW Search & Match Service | Each user incurs a fee charged to the registry | ||||||
| BMDW IT expert for data submission | Only accessible for WMDA Members, person who is responsible for the data upload to BMDW Search & Match Service | 1 | None | None |
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