In some cases you may see donors or CBUs that look like the one above. There is not information regarding GRID, registry, CBB, age or any other non-HLA/ethnicity information. The reason for this is that the search was in the Hap-E search result, but can no longer be found in our internal database. We are therefore not able to show any additional information other then what the Hap-E matching engine provided. This can have several causes. - The search was not recently performed and the patient is not in the ACT state.
- It is a donor from the Japanese registry (ION-4364). In that case there is registry information available, but all donors seem to be 33 years old and there are no identifiers. This is because Japan Marrow Donor Program does not send any information except for HLA to our systems.
- It is a donor from the Chinese Marrow Donor Program (ION-2197). In that case there is registry information available, but all donors seem to be 33 years old and there is no GRID. This is because Chinese Marrow Donor Program did not send GRID or birth date in their last upload (2017-11-09)
How to resolve: - If the search is not recent, it is best to refresh the searches for a patient. See https://share.wmda.info/x/dZUZGQ for instructions on how to do that.
- If the donor is from the Japan Marrow Donor Program or Chinese Marrow Donor Program, contact this registry for more information.
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