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Comment: GRID as primary ID
Registryoperationalinfo
Wu_req_form_requireYes
uoidION-6939
Work_scheduleMonday - Friday
Wu_HHSQ_formNo
Wu_req_patient_requirYes
Prelim_search_reqYes
Post_direct_contactAllowed at the earliest two years after transplantation or one year after a second donation, if patient and donor agree and sign a declaration of consent
Donor_ID_exampleDE XYZ 1234567890 | GRID: 6939 XYZ0 0012 3456 731 | DE XYZ 1234567890 (previous ID format)
orgnameZKRD
Registry_closuresSee WMDA Calendar
Time_zoneEurope/Brussels (GMT+01:00)
Post_anony_contactAnonymous patient-donor contact is permitted after the transplantation
Subsequent_donationPossible, please see Chapter 6 of the German Standards(https://www.zkrd.de/wp-content/uploads/2020/11/German-Standards_V12_english.pdf)
Ext_type_reqYes
Ext_type_optionHigh resolution HLA-A, -B, -C, -DRB1, -DRB3/4/5, -DQB1, -DPB1, -DQA1, -DPA1
Verif_days_reserved60 days after shipment of sample. Up to 90 days after receiving CT-results upon request of the registry/TC.
Business_hours08:00 AM to 05:00 PM
Post_gift_excYes, but gift must not be of substantial or monetary value
Post_cbb_contactNo
Sibling_typeYes
Wu_idm_completeYes
Wu_req_limit_dos20 mL/kg (BM); 5 x 10^6 CD34+ cells /kg (PBSC)
Verif_reqYes
Verif_req_max_vol50 ml
Ext_type_days_reserved14 days after providing results
Sibling_procedureemail
Wu_req_ext_pat_infoAll patient and donor data reported on the Work-up Request and the prescription including 5 loci high resolution HLA
Verif_idm_completeYes