To facilitate the exchange of information and improve business relations, the WMDA provides access to contact data of organisations that are listing donors or cord blood products in the global database , BMDWof Bone Marrow Donors Worldwide (BMDW, www.bmdw.org).
The following information is available:
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| Type of organisation | Data available | Sources | Maintained by |
|---|---|---|---|
| Listing Organisations (DR) | Contact details Operational information Regulatory requirements information Documents (e.g. price lists) Personal data only available for WMDA members after login | WMDA address database
Listing Organisationorganisation | The contact details are updated automatically from the WMDA address database. The operational information, regulatory requirements information and documents are updated by the listing organisations. Each organisation has indentified identified a registry profile administrator who is responsible for updating the information. Personal data can be added by the registry profile administrator by filling in a request form. |
| Cord Blood Banks (DRCBB) listing directly in BMDW their cord blood products | Contact details Operational information Regulatory requirements information Documents (e.g. price lists) Personal data only available for WMDA members after login | WMDA address database
Cord Blood Bank | The contact details are updated automatically from the WMDA address database.
The operational information, regulatory requirements information and documents are updated by the listing organisations. Each organisation has indentifiedidentified a registry profile administrator who is responsible for updating the information. Personal data can be added by the registry profile administrator by filling in a request form. |
| Cord Blood Banks affiliated with a registry (CBB) | Contact details Cord Blood Bank Information (Technology Survey) Personal data only available for WMDA members after login | WMDA database CBB Survey 2015 | The contact details are updated automatically from the WMDA address database. Cord Blood Banks have provided theit information theitrinformation in January/February 2015. In case a cord blood bank is missing it is possible to provide this information. Please contact the WMDA office (mail@wmda.info) and ask for the link. In 2017 the information will be updated. Personal data can be added by the registry profile administrator by filling in a request form. |
Organisations are identified as follows:
- Listing organisations have an ION (Issuing Organisation Number): a globally unique identifier, as issued by the ICCBBA, which maintains the authorative list of ION's.
- All other organisations without an ION are referenced by their WO number, as used by the WMDA internally.
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Helpful Navigation Tips:
- The "Watch" feature can be clicked for a space which allows automatic emails to be sent to your address notifying you when information has been edited.
- The "Share" feature allows you to send the page to desired people
- The "…" feature allows you to export certain pages on the space to printable documents
- For registered users (WMDA members) additional/restricted information may be accessed by clicking on the
Permissions:
- This page is publicly visible
- Editing is restricted to the registry profile administrators
- Editing if is further restricted on page level to specific persons (record owners)
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Registry Profile Administrator Requirements:
It is each organizations organisations designated registry profile administrator's responsibility to ensure all information displayed for their organisation is accurate at all times. By compiling, this resource will be a valuable tool for patients, donors, and organisations worldwide.
Type of Edit | Title of Tables/Page | Action for editing |
Editable by user on page | Operational information, regulatory requirements information and documents | Follow instructions in HelpTips document |
Not editable by user on page | Contact details, registry information, affiliated organizations, emergency contact, persons and functions, registry closures on main calendar | Must use ‘Edit’ button found on registry page main page by clicking key symbol in additional resource title |
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