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Organisation types

Information about organisations that are listing either donors or cord blood units for international patients in need of a transplant:

To facilitate the exchange of information and to improve business relations, WMDA provides access to contact data of organisations that are listing donors or cord blood products in the global database of Search & Match Service (formerly BMDW).The following information is available:

Type of organisationData availableMaintained by organisation profile administrator appointed by the organisation

DR → Donor Registry

Definitions as set out in WMDA Standards (version January 1, 2020): An organisation responsible for coordination of the search for hematopoietic stem cells from donors unrelated to the potential recipient.

  • The patient registry or requesting registry is the registry that acts on behalf of their transplant centres.
  • The donor registry or providing registry is the registry that provides the hematopoietic stem cell product.
  • Contact details
  • Operational information
  • Regulatory survey
  • Documents (e.g. price lists)
  • Personal data only available for WMDA members after login
  • Personal data can be added or deleted by the organisation profile administrator by filling in a request form. The contact details are updated automatically from the WMDA address database.
  • The operational information, regulatory requirements information and (member) documents are updated by the organisation profile administrator

CBB → Cord Blood Bank

Definitions as set out in WMDA Standards (version January 1, 2020): A facility responsible for donor management and the collection, processing, testing, cryopreservation, storage, listing, reservation, release, and distribution of cord blood units. 

  • Contact details
  • If the CBB is a listing organisation the following data is also available:
    • Cord Blood Bank survey
    • Documents (e.g. forms, price lists)
    • Personal data only available for WMDA members after login
  • Personal data can be added or deleted by the organisation profile administrator by filling in a request form. The contact details are updated automatically from the WMDA address database.
  • The (member) documents  and cord blood bank operational and technical information are updated by the organisations. 

→ In case a cord blood bank is missing, it is possible to provide this information. Please contact the WMDA office (mail@wmda.info) and ask for the link.

DR with CBU → Donor Registry that lists both donors and cords that directly provides cord blood units and hematopoietic stem cell (without collaboration with a registry)
  • Contact details
  • Operational information
  • Regulatory survey
  • Documents (e.g. price lists)
  • Personal data only available for WMDA members after login
  • Personal data can be added or deleted by the organisation profile administrator by filling in a request form. The contact details are updated automatically from the WMDA address database.
  • The operational information, regulatory requirements information and (member) documents are updated by the organisation profile administrator

DC → Donor Centre

Definition as set out in WMDA Standards (version January 1, 2020): An organisation responsible for donor recruitment, consenting, testing, management and the collection of donor personal, genetic, medical data.  

  • Contact details
  • Operational information

Organisations identify

Roles defined

  • Listing organisations or donor centres (if approved by the registry) have an ION (Issuing Organisation Number): a globally unique identifier, as issued by ICCBBA, which maintains the official list of ION's.
  • All other organisations without an ION are referenced by their WO number, as used by the WMDA internally.
FunctionDescriptionNumber per registryAccess to WMDA Share
Primary Emergency Contact

Only accessible for WMDA members, primary contact point that can be contacted by WMDA members in case of emergency (e.g. work-up cancellation, transport problems)

1None
Secondary Emergency Contact

Only accessible for WMDA members, second contact point that can be contacted by WMDA members in case of emergency (e.g. work-up cancellation, transport problem) in case the primary contact does not respond

1None
Organisation Profile AdministratorOnly accessible for WMDA members, person responsible for updating the registry and/or cord blood information on WMDA Share (address, contact person, operational information, regulatory information, cord blood operational information, cord blood technical information).Multiple Has edit rights to organisational profile on WMDA Share.
WMDA voting member
Only accessible for WMDA members, person eligible to serve as the WMDA organisational representative and to vote on behalf of the organisation.1Access to WMDA Share
Medical director

Only accessible for WMDA members, medical director

1None
Search coordinator

Only accessible for WMDA members, search coordinator

MultipleNone
S(P)EAR alert contactOnly accessible for WMDA members, person who will receive the rapid alerts from the S(P)EAR Committee.MultipleNone
WMDA member - free of chargeOnly accessible for WMDA members, persons who are appointed by the WMDA member organisation to serve as a WMDA member
MulitpleAccess to WMDA Share
WMDA global trend report
Only accessible for WMDA members, persons who are appointed by the WMDA member organisation to fill in the WMDA Global Trend Report (annual questionnaire)
1Annual questionnaire web application
Search & Match Registry Registry UserOnly accessible for WMDA members, person who will have access to the Search & Match Service.MultipleSearch & Match Service
IT expert for data submissionOnly accessible for WMDA members, person who is responsible for the data upload to the Search & Match Service.1None

Navigation tips

Helpful Navigation Tips

  • The "Watch" feature can be clicked for a space which allows automatic emails to be sent to your address notifying you when information has been edited.
  • The "Share" feature allows you to send the page to desired people
  • The "…" feature allows you to export certain pages on the space to printable documents
  • For registered users (WMDA members) additional/restricted information may be accessed by clicking on
Permissions

Permissions and restrictions

  • This page is publicly visible
  • Editing is restricted to the organisation profile administrators
  • Editing is further restricted on page level to specific persons (record owners)
Profile administrator

Information about and for the organisation profile administrator

It is each organisations designated organisation profile administrator's responsibility to ensure all information displayed for their organisation is accurate at all times. By compiling, this resource will be a valuable tool for patients, donors, and organisations worldwide.

Type of Edit

Title of Tables/Page

Action for editing

Editable by user on page

Operational information, regulatory requirements information and documents

Follow instructions in Helpful Tips document

Not editable by user on page

Contact details, registry information, affiliated organizations, emergency contact, persons and functions, registry closures on main calendar, CBB survey

Must use ‘Edit’ button found on registry page main page by clicking key symbol in additional resource title

Guidance on how to update the profile data Any omissions, errors or corrections can be communicated by email to mail@wmda.info

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