Information from Karelian BMD Registry (ION 8256)
- Shipping donor’s blood samples for confirmatory typing is possible to all countries of the world with the exception of Syria, Cuba and North Korea. Shipping times depend on the specific country receiving the parcel with blood samples.
- Donor’s medical examination at the stage of confirmatory typing is carried out in Russia.
- Work-up and donor’s product collection *:
a) performed in Russia if courier can deliver the donor’s product from Russia to the transplant center;
b) performed outside Russia if courier is unable to deliver the donor’s product from Russia to the transplant center.
* In each case the decision is made jointly with the requesting registry taking into account the specific situation.
Contacts for requesting centers: e-mail: karelianbmd.donation@yahoo.com; karelian.bmd@onego.ru
tel: +7 905 299 91 8; fax: +7 8142 765 897
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Operational data for Karelian Registry of unrelated hematopoietic stem cell donors - ION-8256 | |
|---|---|
| Organisation Overview | |
| The information has been reviewed in year : | 2023-2024 |
| Issuing organisation Number (ION) | ION-8256 The Issuing Organisation Number of a organisation, this is globally unique number, as issued by the ICCBBA. |
| Time zone | Europe/Moscow (GMT+03:00) The timezone in which this organisation operates. |
| Business hours | 9 - 18 The daily hours in which this organisation operates. |
| Work schedule | Monday - Friday The normal work week in which this organisation operates. |
| Organisation closures | Jan, 1st For all organisation closures, please see the WMDA Calendar. |
| Donor ID example | 82560000KAR00412827 ID to be expected on paperwork, samples, and products. |
| Preliminary Search | |
| Requires preliminary search request form | No If yes, form required can be found on the Documents Page. |
| Extended Typing | |
| Typing options available for request | HR, LR, ER HLA-A, B, C, DR, DQ, DP Please note special requirements listed |
| Requires organisation specific typing request form | No If yes, form required can be found on the Documents Page. |
| Number of days donor is reserved for a patient after a request | 90 days |
| Verification Typing | |
| Maximum blood volume allowed | 50 ml |
| Requires organisation specific typing request form | No If yes, form required can be found on the Documents Page. |
| IDM testing performed at verification | Yes |
| Number of days donor is reserved for a patient after a request | 90 days |
| Sibling Typing | |
| Registry is willing to arrange sibling typings | Not applicable |
| If yes, procedure to apply for sibling typings | |
| Workup Request | |
| Product dosage limit | 20 ml/kg (BM); 5 x 10^6 CD34+ cells/kg (PBSC) Number of donor cells allowed based on recipient weight. |
| Requires patient to meet certain standards in order to proceed with collection | No Organisation may or may not allow donor collections for some patients. |
| Patient physician must report the following in order to proceed with collection | Patient physician needs to provide the report of patient status and treatment plan. For export of the blood samples for verification typing, you will have to fill in a special agreement, which you can find in the membership documents session. Blood samples can be shipped on Monday, Tuesday and Wednesday. Must provide additional information to organisation. |
| Requires organisation specific work up forms | No If yes, form(s) required can be found on the Documents Page. |
| Workup IDM completed 30 days prior to collection | Yes Donor IDM results must be performed within 30 days of collection date to be valid and allow the collection to proceed. |
| Medical Health Questionnaire example available | Yes If yes, the example can be found on the Documents Page. |
| Post-Transplant | |
| Subsequent donation policy | Possible |
| Anonymous contact allowed | Yes. As far as possible |
| Direct contact allowed | Yes. 3 years after transplant |
| Gift exchange allowed | Yes, but gift must not be of substantial or monetary value |
| Cord blood contact allowed | No |