This data is publicly available. Parent page : ION-1033
Operational data for Gift of Life Marrow Registry - ION-1033
Organisation Overview The information has been reviewed in year : Issuing organisation Number (ION) ION-1033
The Issuing Organisation Number of a organisation, this is globally unique number, as issued by the ICCBBA.Time zone America/New_York (GMT-05:00)
The timezone in which this organisation operates.Business hours 8:30AM to 5:00PM
The daily hours in which this organisation operates.Work schedule Monday to Friday; Available 24/7 via pager for emergencies
The normal work week in which this organisation operates.Organisation closures
For all organisation closures, please see the WMDA Calendar.Donor ID example GRID
ID to be expected on paperwork, samples, and products.Preliminary Search Requires preliminary search request form Yes
If yes, form required can be found on the Documents Page.Extended Typing Typing options available for request IR/HR HLA A B C DRB1 DQB1 DPB1 DRB3/4/5; CCR5; On Request: KIR
Please note special requirements listedRequires organisation specific typing request form No
If yes, form required can be found on the Documents Page.Number of days donor is reserved for a patient after a request 90 total Verification Typing Maximum blood volume allowed 50 ml (more with approval) Requires organisation specific typing request form Yes
If yes, form required can be found on the Documents Page.IDM testing performed at verification Yes Number of days donor is reserved for a patient after a request 90 total Sibling Typing Registry is willing to arrange sibling typings If yes, procedure to apply for sibling typings Workup Request Product dosage limit
Number of donor cells allowed based on recipient weight.Requires patient to meet certain standards in order to proceed with collection Yes
Organisation may or may not allow donor collections for some patients.Patient physician must report the following in order to proceed with collection Minimal Match Requirement: at least a 7/8 match at an antigen level (serologic split) for HLA A, B, C and DR
Must provide additional information to organisation.Requires organisation specific work up forms Yes
If yes, form(s) required can be found on the Documents Page.Workup IDM completed 30 days prior to collection Yes
Donor IDM results must be performed within 30 days of collection date to be valid and allow the collection to proceed. Medical Health Questionnaire example available Yes
If yes, the example can be found on the Documents Page.Post-Transplant Subsequent donation policy Donor may donate up to 3 times (max. 2 HPCs) for a recipient. Lifetime max. 2 marrow donations. 2 recipients max. Deviations must be approved by the Medical Director. Anonymous contact allowed Yes Direct contact allowed Yes. 1 year upon mutual agreement Gift exchange allowed No. Cord blood contact allowed N/A
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