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This data is publicly available. Parent page : ION-1695

Operational data for Hungarian Stem Cell Donor Registry - ION-1695

Organisation Overview
Issuing organisation Number (ION)ION-1695
The Issuing Organisation Number of a organisation, this is globally unique number, as issued by the ICCBBA.
Time zoneEurope/Brussels (GMT+01:00)
The timezone in which this organisation operates.
Business hours08:00 AM to 04:00 PM
The daily hours in which this organisation operates.
Work scheduleMonday - Friday
The normal work week in which this organisation operates.
Organisation closures
For all organisation closures, please see the WMDA Calendar.
Donor ID exampleHU123456D
ID to be expected on paperwork, samples, and products.
Preliminary Search
Requires preliminary search request formNo
If yes, form required can be found on the Documents Page.
Extended Typing
Typing options available for requestLR HLA-A,B,C,DRB1,DQB1; HR HLA-A,B,C,DRB1,DQB1,DPB1; HR DRB1 with LR C
Please note special requirements listed
Requires organisation specific typing request formNo
If yes, form required can be found on the Documents Page.
Number of days donor is reserved for a patient after a request14 days after providing results
Verification Typing
Maximum blood volume allowed50 ml
Requires organisation specific typing request formNo
If yes, form required can be found on the Documents Page.
IDM testing performed at verificationYes
Number of days donor is reserved for a patient after a request60 days after shipment of sample. Up to 90 days after receiving CT results upon request of the TC/registry.
Workup Request
Product dosage limitLimit based on donor health issues and size, otherwise standard dosage limit.
Number of donor cells allowed based on recipient weight.
Requires patient to meet certain standards in order to proceed with collectionYes
Organisation may or may not allow donor collections for some patients.
Patient physician must report the following in order to proceed with collectionAll patient and donor data reported on the Work-Up request and the prescription including 5 loci high resolution HLA
Must provide additional information to organisation.
Requires organisation specific work up forms No
If yes, form(s) required can be found on the Documents Page.
Workup IDM completed 30 days prior to collectionYes
Donor IDM results must be performed within 30 days of collection date to be valid and allow the collection to proceed.
Medical Health Questionnaire example availableYes
If yes, the example can be found on the Documents Page.
Post-Transplant
Subsequent donation policyA donor may donate twice HPCs for the same recipient.
Anonymous contact allowedAnonymous patient-donor contact is permitted after the transplantation.
Direct contact allowedAllowed two years after transplantation, if patient and donor agree and signed a declaration of consent.
Gift exchange allowedonly gifts of low value and without reference to the sender's identity.
Cord blood contact allowedNA

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