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This data is publicly available. Parent page : ION-4596

Operational data for DKMS Registry - ION-4596

Organisation Overview
Issuing organisation Number (ION)ION-4596
The Issuing Organisation Number of a organisation, this is globally unique number, as issued by the ICCBBA.
Time zoneEurope/Amsterdam (GMT+01:00)
The timezone in which this organisation operates.
Business hours8:00 AM to 5:00 PM
The daily hours in which this organisation operates.
Work scheduleMonday - Friday
The normal work week in which this organisation operates.
Organisation closures1st January, 6th January, 1st May, 3rd October, 1st November, 24th December, 25th December, 26th December, 31st December
For all organisation closures, please see the WMDA Calendar.
Donor ID exampleFor ION-9935: INBMST12A003456, for ION-1574: CLDKM123456
ID to be expected on paperwork, samples, and products.
Preliminary Search
Requires preliminary search request formNo
If yes, form required can be found on the Documents Page.
Extended Typing
Typing options available for requestStandard: HLA-A, -B, -C, -DRB1, -DQB1, -DPB1; Upon request: HLA-DRB3/4/5, -DQA1, -DPA1, KIR, CCR5, HLA-E and MICA/-B
Please note special requirements listed
Requires organisation specific typing request formNo
If yes, form required can be found on the Documents Page.
Number of days donor is reserved for a patient after a request
Verification Typing
Maximum blood volume allowed50 ml
Requires organisation specific typing request formNo
If yes, form required can be found on the Documents Page.
IDM testing performed at verificationYes
Number of days donor is reserved for a patient after a request90 days
Sibling Typing
Registry is willing to arrange sibling typingsYes
If yes, procedure to apply for sibling typings Send documents to familydonors@dkms.org
Workup Request
Product dosage limitHSC apheresis: CD34+ cell from 1.5 to 5 x 10^6 / kg bodyweight of the recipient; HSC bone marrow: TNC from 3 to 5 x 10^8 / kg bodyweight of the recipient. he collection of TNC is limited, as only 20 ml bone marrow / kg bodyweight of the donor and max. 1500 ml can be collected.
Number of donor cells allowed based on recipient weight.
Requires patient to meet certain standards in order to proceed with collectionYes
Organisation may or may not allow donor collections for some patients.
Patient physician must report the following in order to proceed with collectionAge, gender, diagnosis, blood group. For compasionate therapy an ethical review board approval is required and the medical advisor need to approve it.
Must provide additional information to organisation.
Requires organisation specific work up forms No
If yes, form(s) required can be found on the Documents Page.
Workup IDM completed 30 days prior to collectionYes
Donor IDM results must be performed within 30 days of collection date to be valid and allow the collection to proceed.
Medical Health Questionnaire example available
If yes, the example can be found on the Documents Page.
Post-Transplant
Subsequent donation policySubsequent donations are in principle possible, but will be evaluated individually
Anonymous contact allowedYes, after transplantation
Direct contact allowedYes, two years after transplantation if both parties consent
Gift exchange allowedYes, one gift per donor or recipient. No waiting period post transplant, value max 20€
Cord blood contact allowedn/a

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