This data is publicly available. Parent page : ION-7358
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Operational data for Portuguese Bone Marrow Donors Registry ( CEDACE) - ION-7358
Organisation Overview Issuing organisation Number (ION) ION-7358
The Issuing Organisation Number of a organisation, this is globally unique number, as issued by the ICCBBA.Time zone Europe/Lisbon (GMT)
The timezone in which this organisation operates.Business hours 09:00 am to 16 pm
The daily hours in which this organisation operates.Work schedule Monday - Friday
The normal work week in which this organisation operates.Organisation closures
For all organisation closures, please see the WMDA Calendar.Donor ID example PS 55555
ID to be expected on paperwork, samples, and products.Preliminary Search Requires preliminary search request form No
If yes, form required can be found on the Documents Page.Extended Typing Typing options available for request IR - A*,B*,C*,DRB1*,DQB1*, HR- A*,B*,C*,DRB1*,DQB1
Please note special requirements listedRequires organisation specific typing request form Yes
If yes, form required can be found on the Documents Page.Number of days donor is reserved for a patient after a request 15 days of calender after the results Verification Typing Maximum blood volume allowed 30 ml Requires organisation specific typing request form Yes
If yes, form required can be found on the Documents Page.IDM testing performed at verification Yes Number of days donor is reserved for a patient after a request Up to 90 days Sibling Typing Registry is willing to arrange sibling typings If yes, procedure to apply for sibling typings Workup Request Product dosage limit BM-TNC 4x10^8; PBSC-CD34+ 5x10^6
Number of donor cells allowed based on recipient weight.Requires patient to meet certain standards in order to proceed with collection Yes
Organisation may or may not allow donor collections for some patients.Patient physician must report the following in order to proceed with collection Yes. Physician must provide aditional information
Must provide additional information to organisation.Requires organisation specific work up forms Yes
If yes, form(s) required can be found on the Documents Page.Workup IDM completed 30 days prior to collection Yes
Donor IDM results must be performed within 30 days of collection date to be valid and allow the collection to proceed. Medical Health Questionnaire example available Yes
If yes, the example can be found on the Documents Page.Post-Transplant Subsequent donation policy Must provide additional information to Registry. Anonymous contact allowed After transplantation and through CEDACE Direct contact allowed No Gift exchange allowed Yes, if with low economic value Cord blood contact allowed NA
Calendar of registries