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Registryoperationalinfo
Wu_req_form_requireNo
uoidION-4596
Work_scheduleMonday - Friday
Wu_req_patient_requirYes
Prelim_search_reqNo
Post_direct_contactYes, Allowed at the earliest two years after transplantation if both parties consentor one year after a second donation, if patient and donor agree and sign a declaration of consent.
Donor_ID_exampleFor ION-9935: INBMST12A003456, for ION-1574: CLDKM123456Only GRID is used for communication.
orgnameDKMS Registry
Registry_closures01/01/2016; 01/06/2016; 03/25/2016; 03/28/2016; 05/01/2016; 05/05/2016; 05/16/2016; 05/26/2016; 10/03/2016; 11/01/2016; 12/25/2015; 12/26/2016
Time_zoneEurope/Amsterdam (GMT+01:00)
Post_anony_contactYes, after transplantationAnonymous patient-donor contact is permitted after the transplantation.
Subsequent_donation Subsequent donations are in principle possible, but will be evaluated individually donation requests have to be approved by our medical advisors. For more information please see DKMS Operational User Guide.
Ext_type_reqNo
Ext_type_optionHigh resolutionStandard: HLA-A, -B, -C, -DRB1, -DQB1, -DPB1; blood group, rhesus factor, CMV IgGUpon request: HLA-DRB3/4/5, -DQA1, -DPA1, KIR, CCR5, HLA-E and MICA/-B
Verif_days_reserved90 days
Business_hours8:00 AM to 5:00 PM
Post_gift_excYes, if with low economic value one gift per donor or recipient. No waiting period post transplant, value max 20€
Post_cbb_contactn/a
Sibling_typeYes
Wu_idm_completeYes
Wu_req_limit_dosThe dosage limit for BM workup is 5*10^8 cells/kg and for PBST workup 5*10^6 cells/kg. If higher amounts of cells are required, a reason needs to be given on the workup forms.PBSC: CD 34+ 5x10^6/kg bodyweight recipient; BM: TNC 3-5 x 10^8/kg bodyweight recipient or 20 ml bone marrow / kg bodyweight of the donor max. 1500 ml
Verif_reqNo
Verif_req_max_vol50 ml
Ext_type_days_reservedNo reservation after Extended Typing request.
Sibling_procedureSend documents to familydonors@dkms.org
Organisation_closures1st January, 6th January, 1st May, 3rd October, 1st November, 24th December, 25th December, 26th December, 31st December.
Wu_req_ext_pat_infoAge, gender, diagnosis, blood groupFor compasionate therapy an ethical review board approval is required and the medical advisor need to approve it. Patient must be less than 85 years old.
Verif_idm_completeYes