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Table of Contents

If you continue to browse and use this website, you are agreeing to comply with and be bound by the following terms and conditions of use , which together with our privacy policy govern WMDA’s relationship with you in relation to this websiteand with the WMDA Privacy Policy. If you are a registered user or active member of WMDA, your use of the WMDA services is also governed by the Membership Agreement. If you disagree with any part of these terms and conditions, please do not use our services. 

The term WMDA (World Marrow Donor Association) or ‘us’ or ‘we’ refers to the owner of the website whose registered office is Schipholweg 5755, 1st floor, unit 2, 2316ZL Leiden, The Netherlands. Our company registration number is 40448326. The term ‘you’ refers to the user or viewer of our website. 

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Web-based services provided by WMDA

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The This includes the WMDA website and (https://wmda.info/), all subdomains of wmda.info including the WMDA meeting websites.the website, and other sites as listed below:

  • https://wmda.info/: the content of these pages is for your general  information and use only. It is subject to change without notice.General information about the organisation
  • https://share.wmda.info/: More specific information regarding the content of these pages is for your general  information and use only. It is subject to change without notice.
  • worldmarrowdonorday.org: the content of these pages is for your general  information and use only. It is subject to change without notice.
  • education.info: the content of the pages of this e-learning platform is for your general information and use only. It is subject to change without notice.
  • activities of the four WMDA pillars
  • https://education.wmda.info/: E-learning platform
  • https://searchmatch.wmda.info: Searchable search.wmda.info: service operated on behalf of the WMDA Organisational Members, WMDA creates and operates a searchable database of adult donors and cord blood units available for use in hematopoietic stem cell transplantation. The service is operated based on instructions of the WMDA Organisational Members. Use of the service is part of a search stratgy and is only accessible for registered users (staff members of regular and provisional member organisations and authorised transplant centres)
    , accessible only for registered users.
  • https://questionnairedata.wmda.info/: service Service to export global trend trends data provided by participating organisations
  • WMDA meeting websites: Information on upcoming virtual and in-person meetings
  • https://worldmarrowdonorday.org/: Information on this annual event acknowledging donors
  • https://crm-data.wmda.knack.com/spear#welcome/: service to export data provided by participating organisations.info : Published data for registries
  • https://statistics.wmda.info : Statistical information
  • https://spear.wmda.info : Reporting system for serious adverse events and reactions by participating organisations
  • https://connect.wmda.info/api/ : Registry to registry communication system

The information on some of these sites is subject to change without notice.

Access to WMDA online services

WMDA operates two types of services:

  • Public. No user account is needed
  • Restricted. A personal user account is needed. MFA is used or will soon be implemented for all WMDA online services. 

If you are a Registered User or Active Member of WMDA, your use of the WMDA services is also governed by the Membership Agreement and our Privacy Policy, which can be found on the WMDA website. The right for personal access cannot be transferred, sold or rented to anyone else. Visitors of WMDA services are not allowed to submit sensitive personally identifiable information related to donors, patients, or other individuals who may not be members or users of WMDA or its member registries.

Accuracy of material and provided data

. We reserve the right to suspend or terminate any account that we believe is being used for illegal or unauthorised activities, or any account violating these terms. Please remember that we are not responsible for any breaches of security that occur outside of our platforms.

Account sharing

Sharing of user accounts on any web-based service provided by WMDA is strictly prohibited. Each user must create and maintain their individual account. Users are responsible for maintaining the confidentiality of their account information, including login credentials. Any unauthorised sharing of accounts may result in the suspension or termination of access to the service.

Accuracy and operation of services

We will make every effort to keep WMDA websites current and to correct errors brought to our attention. Documents published on the sites WMDA makes best efforts to keep material on these services up to date and accurate. If general errors, such as editorial errors are detected WMDA makes best efforts to correct them as appropriate. Documents published are as indicated, and sometimes they might not be in the final or formally accepted version.

No specific advice

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WMDA does not warrant the error-free operation of its services. WMDA accepts no responsibility or liability whatsoever with regard to material accessed, operated on or downloaded from its services.

Use of information and resources

Information on WMDA websites is not intended to provide specific advice unless it is stated otherwise.

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Use of material

Neither WMDA nor any person acting on its behalf is responsible for the use that might be made of the information or resources contained in these

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services. Users act at their own risk when using

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information or resources on the websites and they are hereby urged to take necessary precautions when evaluating the usefulness and applicability of

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information or resources for their intended purposes.

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In spite of WMDA’s best efforts, sometimes technical errors might occur. WMDA does not warrant the error-free operation of its services. WMDA accepts no responsibility or liability whatsoever with regard to material accessed, operated on or downloaded from its services.

Privacy Policy

The WMDA is committed to user privacy. The WMDA services

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have been structured so that users have to identify themselves with a

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username and a password.

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How is personal data obtained?

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Completion of the online membership form requires the submission of personally identifiable information. WMDA will use the information for the purpose of membership administration (e.g., sending WMDA communications including the invoice for services requested). In case of the online learning platform,

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personal information

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What are my rights as the Data Subject?

The Data Subject has the right to the following information about personal data being processed:

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related to participation and test scores are recorded so that the user can pass a course and/or obtain a diploma.

Members' Rights Regarding Personal Data:

  1. Confirmation as to whether data related to him or her are being processed

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  1. Information about the purposes of the processing operations, the categories of data concerned, and the recipients or categories of recipients to whom the data are disclosed

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  1. Communication of the data undergoing processing

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  1. Knowledge of the logic involved in any decision process concerning the use of

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  1. personal data

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The Data Subject shall have the rights listed below:

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  1. .

Users' Rights Regarding Their Personal Data:

  1. Access to information on his or her processed personal data

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  1. Rectification of any inaccurate or incomplete personal data

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  1. Withdrawal of consent so that personal data will no longer be processed

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  1. Request that his or her personal data be completely erased from the WMDA services to which the data has been exported.

Users and viewers also have the right to lodge a complaint with a supervisory authority:

Data Protection Officer
Schipholweg

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55, 1st floor, unit 2
2316ZL Leiden

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The Data Subject also has the right to lodge a complaint with a supervisory authority. For further information please see Privacy Policy.

Whilst content may be accessed, downloaded and used visitors must not reproduce any material from this website without permission.

Links to other websites

This website includes links to other websites. These links are provided for your convenience to provide further information. They do not signify that we endorse the website(s). We have no responsibility for the content of the linked website(s).

Use of cookies

We use cookies on this site to enhance your user experience. By clicking the accept button on this page you are giving your consent for us to set cookies. Click here the read our statement.

Amendment clause

WMDA is free to unilaterally change the membership Terms and Conditions without giving further notice to the individual member or user. Such changes will, unless otherwise stated, take immediate effect. WMDA will publish changes to the Terms and Conditions on its website. However, members or users are responsible for keeping themselves updated in relation to any changes to the Terms and Conditions.

Governing law and jurisdiction

These Terms and Conditions and any dispute or claim relating to the Terms and Conditions or the Services are governed by and construed in accordance with the laws of the Netherlands. Any dispute arising out of, or related to these Terms and Conditions or the Services, whether contractual or arising from unlawful act, must be exclusively brought before the courts of The Hague in the Netherlands. 

Your access to and use of the Services is conditioned on your acceptance of and compliance with these Terms. These Terms apply to members, users and others who access or use our Services.

III.2.       WMDA Education programs

A)      Entrance requirements

Each individual WMDA educational program may have its own entrance requirements. An overview of the educational programmes can be found at the WMDA website.

B)      Examination

1)      Educational programs are divided into modules, which are finished with a test. Users have to complete the tests within a defined number of attempts with a minimum score of 80% unless otherwise defined. The program is finalized with a final exam, which has to be completed within a defined number of attempts with a minimum score of 75% at a certain period. This is only applicable for users that follow the entire educational program.

2)      In case of failure to complete the final exam successfully, the exam can be retaken once at the next seating. This is included in the course fee. For each addition exam, the participant has to pay administration costs.

3)      If a certain period is defined for completion of a module test, the following rules apply: If a user fails to complete the test in time, the user should notify the project coordinator with the reason of delay. Extended access will be allocated for free upon the first time the user is too late to complete the test. The WMDA is allowed to invoice administration costs upon the second and third time the user is too late to complete a test and notify the supervisor of the user. Hereafter, WMDA is allowed to exclude a user from the program. All invoices for administration costs needs to be fulfilled to participate into the final exam.

C)      Rewarding

Users who applied for the entire course will receive a certificate after successful completion of all tests and final exam. Users who applied for selected modules only, will receive an acknowledgment of participation at the end of the course year for those modules after successful completion of the tests.

III.3.       Search & Match Service of WMDA

 

B)     Permitted use

Users of the Search & Match Service are granted permission to access content. In respect of the use of the Search & Match Service, the following applies:

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  • Any search should begin with attempts to locate a donor within the recipient's family. For instance, by HLA typing the parents or initiating an extended family search. This may include extended family research, for example in case of a frequent haplotype, consanguineous marriage etc.

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  • Donors are added continuously to the global database.
  • This service can only present phenotypes of donors and cord blood units that have been submitted by the participating organisations.
  • (National) registries can assist you with the search.

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, The Netherlands

Important message on data minimisation and security

Unless stated otherwise, visitors to WMDA services are not allowed to submit sensitive personally identifiable information related to donors, patients, or other individuals who may not be members or users of WMDA services or its member registries. See below for specific terms regarding SPEAR and MatchConnect.

Reporting Serious Adverse Events and Reactions (SPEAR) to WMDA

Please note that SPEAR reports may contain privileged and confidential information. It is intended only for the use of the person(s) belonging to the reporting registry and/or their affiliated organisation(s).The data downloaded from the SPEAR online reporting tool remains confidential and should be treated as such. The dissemination, distribution or duplication of the data downloaded from the SPEAR online reporting tool outside of your own registry or organization is therefore prohibited. The WMDA shall not be liable for any indirect, incidental, consequential or punitive damages, whether incurred directly or indirectly, or any loss of data, use, goodwill, or other intangible losses resulting from any content obtained from the SPEAR online reporting tool or due to unauthorized access, use or alteration of downloaded content.

Search, Match & Connect

The Match-Connect service consists of several components. For all components it is not allowed to send information that is not required in order to perform the work that needs to be done on the service. Below we make some specific claims that always count on this platform:

Search & Match Service

URLS: https://searchmatch.wmda.info/ and https://sandbox-search.wmda.info/

In concordance with the general data minimisation principles described above, the following data is never allowed to be entered on this service for a patient or any other person:

  • First name
  • Last name
  • Any reference to the initials
  • Any location information regarding where the person lives

Dataupload

URLs: https://dataupload.wmda.info/ and https://staging-dataupload.wmda.info/

In concordance to the general data minimisation principles described above, the following data is never allowed to be entered on this service for a donor or any other person:

  • First name
  • Last name
  • Any reference to the initials
  • Any location information regarding where the person lives

Registry-to-registry communication system (connect APIs)

URLs: https://connect.wmda.info/api/ and https://sandbox-connect.wmda.info/api/

Depending on the messages being exchanged on this system, there may be differences in the level of personally identifiable information required in order to allow for successful and useful information exchange. Always make sure that the receiving organisation absolutely requires this information at this stage of the communication. If the receiving registry does not require the information, it should not be sent.

Data retention

Include Page
Data retention and destruction policy
Data retention and destruction policy

Copyright

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Whilst content may be accessed, downloaded and used, visitors must are not reproduce allowed to publish any material from this website these websites for public consumption without permission.

C)     Preliminary Search Requests

Users with access to the Search & Match Service can submit preliminary search requests for their patients through this website. The patient and diagnosis information submitted in a preliminary search request must be entered to initiate a search. The Search & Match Service is the secure, proprietary database used to facilitate all patient searches, track patient search histories and maintain the potential volunteer donors and cord blood units across the globe.

E)      Virus Protection

The WMDA makes every effort to check and test material for viruses. However, it is recommended that you run an anti-virus program on all materials downloaded from the internet.

F)      Technical requirements

We aim to extend the use of the Search & Match Service to as wide an audience as possible. However, in order to introduce more advanced features and improve the user experience, there are some technical requirements users must follow.

  • JavaScript: Client scripting must be enabled.
  • Screen Resolution: Search & Match portal is best viewed in resolutions of 1280x1024 upwards.

IV.          GENERAL TERMS

 

Links to other websites

These websites include links to other websites. These links are provided for your convenience to provide further information. We have no responsibility for the content of any linked website(s).

Use of cookies

We use cookies to enhance your user experience. By clicking the accept button, you are giving your consent to the use of cookies.

Amendments

WMDA is free to unilaterally change the Terms of Use without giving further notice to the individual member or user. Such changes will, unless otherwise stated, take immediate effect and will be published on WMDA Share, in the "Stem Cell Matters" newsletter and on the web sites of the relevant WMDA online services. Members or users are responsible for keeping themselves updated in relation to any changes to the Terms of Use.

Governing law and jurisdiction

These Terms of Use A)      Governing law and jurisdiction These Terms and Conditions and any dispute or claim relating to the Terms and Conditions or the Services of Use or the services provided by the WMDA website are governed by and construed in accordance with the laws of the The Netherlands. Any dispute arising out of, or related to, these Terms and Conditions of Use or the Servicesservices, whether contractual or arising from an unlawful act, must be brought exclusively brought before the courts of The Hague in the The Netherlands.

B)      Conflicts In the event of any conflict between these Terms and Conditions and any other document with respect to the Services of WMDA these Terms and Conditions shall govern except as otherwise set forth by the WMDA Board in writing.

C)      Liability disclaimer Care is taken to ensure that the Services and its content are accurate. Nevertheless, your use of the Services or its content are at your own risk. WMDA makes no representations or express or implied warranties regarding the Services or any information provided via the Services; expressly disclaims all legal liability and responsibility for the accuracy, completeness, currency, suitability, validity, or usefulness thereof; and is not and will not be liable for any statements, errors, or omissions in posted information, or for any losses, injuries, or damages that arise or are alleged to arise from the use of the Services or its content. Use of any information provided does not and is not intended to create a contractual or other relationship. All Services and information are provided on an as-is basis. All rights are reserved to remove any information posted via the Services. Medical information is not a substitute for the medical judgment or advice of licensed health care professionals. Treatment options or donation procedures should be determined by an individual and his or her treating physician based on the individual's overall health, age, disease, disease stage, and, if transplant is being considered as a treatment option, the availability of a suitably matched adult donor or umbilical cord blood unit. WMDA will not be liable for any loss or damage caused by a distributed denial-of-service attack, viruses or other technologically harmful material that may infect your computer equipment, computer programs, data or other proprietary material due to your use of the Services or its content. The WMDA is not responsible for the content or reliability of any linked websites. WMDA will not be liable in respect of the content or for the consequences of following any advice included on such sites. WMDA cannot guarantee that the links will work all of the time and has no control over the availability of the linked websites or change of website addresses.

D)      Indemnification You agree to defend, indemnify and hold harmless the WMDA from and against any claims, liabilities, damages, judgments, awards, losses, costs, expenses or fees (including reasonable attorneys’ fees) resulting from your violation of these Terms and Conditions or your use of the Services other than as expressly authorised in these Terms and Conditions or your use of any information obtained from the WMDA.

E)      Intellectual property All intellectual property rights (including but not limited to copyright, trademarks, database rights, design rights and know-how) that relate to the Services and the contents, features and functionality thereof (including but not limited to all information, software, text, displays, images, video and audio, and the design, selection and arrangement thereof), are vested in WMDA. None of this content may be directly or indirectly published, reproduced, copied, stored, manipulated, modified, sold, transmitted, projected, redistributed in any medium, or used in any format without the explicit permission of the WMDA. In order to protect our property, members and users are not allowed to share their login credentials and it should be kept private.

F)       Amendment clause WMDA is free to unilaterally change the membership Terms and Conditions without giving further notice to the individual member or user. Such changes will, unless otherwise stated, take immediate effect. WMDA will publish changes to the Terms and Conditions on its website. However, members or users are responsible for keeping themselves updated in relation to any changes to the Terms and Conditions.

Contact Us

Contact Us

Your access to and use of the services is conditioned on your acceptance of and compliance with these Terms. These Terms apply to members, users and others who access or use our services. If you have any questions about these Terms & Conditionsof Use, please contact the WMDA office by email mail@wmda.info.