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Operational data for Hungarian Stem Cell Donor Registry - ION-1695 | |
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Organisation Overview | |
The information has been reviewed in year : | |
Issuing organisation Number (ION) | ION-1695 The Issuing Organisation Number of a organisation, this is globally unique number, as issued by the ICCBBA. |
Time zone | Europe/Brussels (GMT+01:00) The timezone in which this organisation operates. |
Business hours | 08:00 AM to 04:00 PM The daily hours in which this organisation operates. |
Work schedule | Monday - Friday The normal work week in which this organisation operates. |
Organisation closures | For all organisation closures, please see the WMDA Calendar. |
Donor ID example | HU123456D ID to be expected on paperwork, samples, and products. |
Preliminary Search | |
Requires preliminary search request form | No If yes, form required can be found on the Documents Page. |
Extended Typing | |
Typing options available for request | LR HLA-A,B,C,DRB1,DQB1; HR HLA-A,B,C,DRB1,DQB1,DPB1; HR DRB1 with LR C Please note special requirements listed |
Requires organisation specific typing request form | No If yes, form required can be found on the Documents Page. |
Number of days donor is reserved for a patient after a request | 14 days after providing results |
Verification Typing | |
Maximum blood volume allowed | 50 ml |
Requires organisation specific typing request form | No If yes, form required can be found on the Documents Page. |
IDM testing performed at verification | Yes |
Number of days donor is reserved for a patient after a request | 60 days after shipment of sample. Up to 90 days after receiving CT results upon request of the TC/registry. |
Sibling Typing | |
Registry is willing to arrange sibling typings | |
If yes, procedure to apply for sibling typings | |
Workup Request | |
Product dosage limit | Limit based on donor health issues and size, otherwise standard dosage limit. Number of donor cells allowed based on recipient weight. |
Requires patient to meet certain standards in order to proceed with collection | Yes Organisation may or may not allow donor collections for some patients. |
Patient physician must report the following in order to proceed with collection | All patient and donor data reported on the Work-Up request and the prescription including 5 loci high resolution HLA Must provide additional information to organisation. |
Requires organisation specific work up forms | No If yes, form(s) required can be found on the Documents Page. |
Workup IDM completed 30 days prior to collection | Yes Donor IDM results must be performed within 30 days of collection date to be valid and allow the collection to proceed. |
Medical Health Questionnaire example available | Yes If yes, the example can be found on the Documents Page. |
Post-Transplant | |
Subsequent donation policy | A donor may donate twice HPCs for the same recipient. |
Anonymous contact allowed | Anonymous patient-donor contact is permitted after the transplantation. |
Direct contact allowed | Allowed two years after transplantation, if patient and donor agree and signed a declaration of consent. |
Gift exchange allowed | only gifts of low value and without reference to the sender's identity. |
Cord blood contact allowed | NA |