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Operational data for Karelian Registry of unrelated hematopoietic stem cell donors - ION-8256 | |
|---|---|
| Organisation Overview | |
| The information has been reviewed in year : | 2023-2024 |
| Issuing organisation Number (ION) | ION-8256 The Issuing Organisation Number of a organisation, this is globally unique number, as issued by the ICCBBA. |
| Time zone | Europe/Moscow (GMT+03:00) The timezone in which this organisation operates. |
| Business hours | 9 - 18 The daily hours in which this organisation operates. |
| Work schedule | Monday - Friday The normal work week in which this organisation operates. |
| Organisation closures | Jan, 1st For all organisation closures, please see the WMDA Calendar. |
| Donor ID example | 82560000KAR00412827 ID to be expected on paperwork, samples, and products. |
| Preliminary Search | |
| Requires preliminary search request form | No If yes, form required can be found on the Documents Page. |
| Extended Typing | |
| Typing options available for request | HR, LR, ER HLA-A, B, C, DR, DQ, DP Please note special requirements listed |
| Requires organisation specific typing request form | No If yes, form required can be found on the Documents Page. |
| Number of days donor is reserved for a patient after a request | 90 days |
| Verification Typing | |
| Maximum blood volume allowed | 50 ml |
| Requires organisation specific typing request form | No If yes, form required can be found on the Documents Page. |
| IDM testing performed at verification | Yes |
| Number of days donor is reserved for a patient after a request | 90 days |
| Sibling Typing | |
| Registry is willing to arrange sibling typings | Not applicable |
| If yes, procedure to apply for sibling typings | |
| Workup Request | |
| Product dosage limit | 20 ml/kg (BM); 5 x 10^6 CD34+ cells/kg (PBSC) Number of donor cells allowed based on recipient weight. |
| Requires patient to meet certain standards in order to proceed with collection | No Organisation may or may not allow donor collections for some patients. |
| Patient physician must report the following in order to proceed with collection | Patient physician needs to provide the report of patient status and treatment plan. For export of the blood samples for verification typing, you will have to fill in a special agreement, which you can find in the membership documents session. Blood samples can be shipped on Monday, Tuesday and Wednesday. Must provide additional information to organisation. |
| Requires organisation specific work up forms | No If yes, form(s) required can be found on the Documents Page. |
| Workup IDM completed 30 days prior to collection | Yes Donor IDM results must be performed within 30 days of collection date to be valid and allow the collection to proceed. |
| Medical Health Questionnaire example available | Yes If yes, the example can be found on the Documents Page. |
| Post-Transplant | |
| Subsequent donation policy | Possible |
| Anonymous contact allowed | Yes. As far as possible |
| Direct contact allowed | Yes. 3 years after transplant |
| Gift exchange allowed | Yes, but gift must not be of substantial or monetary value |
| Cord blood contact allowed | No |