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Operational data for Karelian Registry of unrelated hematopoietic stem cell donors - ION-8256

Organisation Overview
The information has been reviewed in year :2023-2024
Issuing organisation Number (ION)ION-8256
The Issuing Organisation Number of a organisation, this is globally unique number, as issued by the ICCBBA.
Time zoneEurope/Moscow (GMT+03:00)
The timezone in which this organisation operates.
Business hours9 - 18
The daily hours in which this organisation operates.
Work scheduleMonday - Friday
The normal work week in which this organisation operates.
Organisation closuresJan, 1st
For all organisation closures, please see the WMDA Calendar.
Donor ID example82560000KAR00412827
ID to be expected on paperwork, samples, and products.
Preliminary Search
Requires preliminary search request formNo
If yes, form required can be found on the Documents Page.
Extended Typing
Typing options available for requestHR, LR, ER HLA-A, B, C, DR, DQ, DP
Please note special requirements listed
Requires organisation specific typing request formNo
If yes, form required can be found on the Documents Page.
Number of days donor is reserved for a patient after a request90 days
Verification Typing
Maximum blood volume allowed50 ml
Requires organisation specific typing request formNo
If yes, form required can be found on the Documents Page.
IDM testing performed at verificationYes
Number of days donor is reserved for a patient after a request90 days
Sibling Typing
Registry is willing to arrange sibling typingsNot applicable
If yes, procedure to apply for sibling typings
Workup Request
Product dosage limit20 ml/kg (BM); 5 x 10^6 CD34+ cells/kg (PBSC)
Number of donor cells allowed based on recipient weight.
Requires patient to meet certain standards in order to proceed with collectionNo
Organisation may or may not allow donor collections for some patients.
Patient physician must report the following in order to proceed with collectionPatient physician needs to provide the report of patient status and treatment plan. For export of the blood samples for verification typing, you will have to fill in a special agreement, which you can find in the membership documents session. Blood samples can be shipped on Monday, Tuesday and Wednesday.
Must provide additional information to organisation.
Requires organisation specific work up forms No
If yes, form(s) required can be found on the Documents Page.
Workup IDM completed 30 days prior to collectionYes
Donor IDM results must be performed within 30 days of collection date to be valid and allow the collection to proceed.
Medical Health Questionnaire example availableYes
If yes, the example can be found on the Documents Page.
Post-Transplant
Subsequent donation policyPossible
Anonymous contact allowedYes. As far as possible
Direct contact allowedYes. 3 years after transplant
Gift exchange allowedYes, but gift must not be of substantial or monetary value
Cord blood contact allowedNo

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