Information available for organisation types
To facilitate the exchange of information and to improve business relations, WMDA provides access to contact data of organisations that are listing donors or cord blood products in the global database of Search & Match Service (formerly BMDW).
The following information is available:
| Type of organisation | Data available | Sources | Maintained by |
|---|---|---|---|
Listing Organisations (DR) Defined as: An organisation listing donors and cord blood products in the Search & Match Service directly or through another organisation and that has a registered ION. A listing organisation is not a donor registry as defined in the WMDA Standards. | Contact details Operational information Regulatory requirements information (including import- and export requirements) Documents Personal data only available for WMDA members after login | WMDA address database Listing organisation | The contact details are updated automatically from the WMDA address database. The operational information, regulatory requirements information and documents are updated by the listing organisations. Each organisation has identified an organisation profile administrator who is responsible for updating the information. Personal data can be added or deleted by the organisation profile administrator by filling in a request form. |
Cord Blood Banks (DRCBB) listing their cord blood products directly in the Search & Match Service. Defined as: A cord blood bank listing cord blood products directly in Seach & Match Service (not affiliated with a registry) | Contact details Operational information Regulatory requirements information (including import- and export requirements) Documents Personal data only available for WMDA members after login | WMDA address database Cord Blood Bank | The contact details are updated automatically from the WMDA address database. The operational information, regulatory requirements information and documents are updated by the listing organisations. Each organisation has identified an organisation profile administrator who is responsible for updating the information. Personal data can be added by the organisation profile administrator by filling in a request form. |
| Cord Blood Banks affiliated with a registry (CBB) | Contact details Cord Blood Bank Information (Technology Survey) Personal data only available for WMDA members after login | WMDA database CBB Survey 2015 | The contact details are updated automatically from the WMDA address database. Cord Blood Banks have provided their information in January/February 2015. In case a cord blood bank is missing, it is possible to provide this information. Please contact the WMDA office (mail@wmda.info) and ask for the link. In 2018 the information will be updated. Personal data can be added by the organisation profile administrator by filling in a request form. |
Only accessible for WMDA members, primary contact point that can be contacted by WMDA members in case of emergency (e.g. workup cancellation, transport problems) This contact is for information purposes only and does not fulfill a specific role within WMDA. Only accessible for WMDA members, second contact point that can be contacted by WMDA members in case of emergency (e.g. workup cancellation, transport problem) in case the primary contact does not respond This contact is for information purposes only and does not fulfill a specific role within WMDA. Only accessible for WMDA members, medical director This contact is for information purposes only and does not fulfill a specific role with the WMDA. Only accessible for WMDA members, search coordinator This contact is for information purposes only and does not fulfill a specific role with the WMDA.Organisations identify
Organisations are identified as follows: Function Description Number per registry Access to WMDA Share Cost implications Primary Emergency Contact 1 None None Secondary Emergency Contact 1 None None Organisation Profile Administrator Only accessible for WMDA members, person responsible for maintaining the registry organisation profile page on WMDA Share (address, contact person, operational information, regulatory information). Multiple Has edit rights to organisational profile on WMDA Share. None WMDA registry representative Only accessible for WMDA members, person eligible to serve as the WMDA organisational representative and to vote on behalf of the organisation. 1 Access to WMDA Share Included in WMDA membership fee Medical director 1 None None Search coordinator Multiple None None S(P)EAR alert contact Only accessible for WMDA members, person who will receive the rapid alerts from the S(P)EAR Committee. Multiple None None WMDA member - free of charge Only accessible for WMDA members, persons who are appointed by the registry to serve as a WMDA member (there is a maximum of persons a registry can appoint, based on the number of donors/cord blood units listed). Limited Access to WMDA Share Included in WMDA membership fee Additional WMDA member Only accessible for WMDA members, persons who are appointed by the registry to serve as a WMDA member (above the maximum of persons). Multiple Access to WMDA Share Annual fee WMDA annual report Only accessible for WMDA members, persons who are appointed by the registry to fill in the WMDA Annual Questionnaire. 1 Annual questionnaire web application None Search & Match Registry User Only accessible for WMDA members, person who will have access to the Search & Match Service. Multiple Search & Match Service Each user incurs a fee charged to the registry IT expert for data submission Only accessible for WMDA members, person who is responsible for the data upload to the Search & Match Service. 1 None None
Helpful Navigation Tips
- The "Watch" feature can be clicked for a space which allows automatic emails to be sent to your address notifying you when information has been edited.
- The "Share" feature allows you to send the page to desired people
- The "…" feature allows you to export certain pages on the space to printable documents
- For registered users (WMDA members) additional/restricted information may be accessed by clicking on
Permissions
- This page is publicly visible
- Editing is restricted to the organisation profile administrators
- Editing is further restricted on page level to specific persons (record owners)
Information about and for the organisation profile administrator
It is each organisations designated organisation profile administrator's responsibility to ensure all information displayed for their organisation is accurate at all times. By compiling, this resource will be a valuable tool for patients, donors, and organisations worldwide.
Type of Edit | Title of Tables/Page | Action for editing |
Editable by user on page | Operational information, regulatory requirements information and documents | Follow instructions in Helpful Tips document |
Not editable by user on page | Contact details, registry information, affiliated organizations, emergency contact, persons and functions, registry closures on main calendar, CBB survey | Must use ‘Edit’ button found on registry page main page by clicking key symbol in additional resource title |
Any omissions, errors or corrections can be communicated by email to mail@wmda.info
- You can read here helpful tips how to maintain and update your information.
Disclaimer
The WMDA makes no representations or express or implied warranties regarding any information on this site or obtained through these links; expressly disclaims all legal liability and responsibility for the accuracy, completeness, currency, suitability, validity, or usefulness of such information; and is not and will not be liable for any statements, errors, or omissions in posted information, or for any losses, injuries, or damages that arise or are alleged to arise from such information. Use of any information provided on this site does not and is not intended to create a contractual or other relationship. All information is on an as-is basis. All rights are reserved to remove any information posted on the site.
You may not conduct any systematic or automated data collection activities (including without limitation scraping, data mining, data extraction and data harvesting) on or in relation to our website without our express written consent.
You may not access or otherwise interact with our website using any robot, spider or other automated means, or violate the directives set out in the robots.txt file for our website.
You may not use data collected from our website for ANY (direct) marketing activity.