Information available for organisation types
To facilitate the exchange of information and to improve business relations, WMDA provides access to contact data of organisations that are listing donors or cord blood products in the global database of Search & Match Service (formerly BMDW).
The following information is available:
| Cord blood bank | A facility responsible for donor management and the collection, processing, testing, cryopreservation, storage, listing, reservation, release, and distribution of cord blood units. |
| Donor centre | An organisation responsible for donor recruitment, consenting, testing, management and the collection of donor personal, genetic, medical data. |
| Registry | An organisation responsible for coordination of the search for hematopoietic stem cells from donors (including cord blood) unrelated to the potential recipient.
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| Type of organisation | Data available | Maintained by |
|---|---|---|
(DR) → Donor registry Definitions as set out in WMDA Standards (version January 1, 2020): An organisation responsible for coordination of the search for hematopoietic stem cells from donors unrelated to the potential recipient.
| Contact details Operational information Regulatory survey Documents Personal data only available for WMDA members after login | Personal data can be added or deleted by the organisation profile administrator by filling in a request form. The contact details are updated automatically from the WMDA address database. The operational information, regulatory requirements information and (member) documents are updated by the organisations. Each organisation has identified an organisation profile administrator who is responsible for updating the information. |
CBB → Cord Blood Bank Definitions as set out in WMDA Standards (version January 1, 2020): A facility responsible for donor management and the collection, processing, testing, cryopreservation, storage, listing, reservation, release, and distribution of cord blood units. | Contact details If the CBB is a listing organisation the following data is also available: Cord Blood Bank survey Documents Member documents only available for WMDA members after login Personal data only available for WMDA members after login | Personal data can be added or deleted by the organisation profile administrator by filling in a request form. The contact details are updated automatically from the WMDA address database. The (member) documents are updated by the organisations. The Cord Blood Bank survey is completed by the organisations. The organisation has provided their information in 2017. Each organisation has identified an organisation profile administrator who is responsible for updating the information. → In case a cord blood bank is missing, it is possible to provide this information. Please contact the WMDA office (mail@wmda.info) and ask for the link. |
| DRCBB → Donor registry AND Cord Blood Bank within one organisation | Contact details Operational information Regulatory survey Cord Blood Bank survey Documents Member documents only available for WMDA members after login Personal data only available for WMDA members after login | Personal data can be added or deleted by the organisation profile administrator by filling in a request form. The contact details are updated automatically from the WMDA address database. The operational information, regulatory requirements information, and (member) documents are updated by the organisations. The Cord Blood Bank survey is completed by the organisations. The organisation has provided their information in 2017. Each organisation has identified an organisation profile administrator who is responsible for updating the information. |
Only accessible for WMDA members, primary contact point that can be contacted by WMDA members in case of emergency (e.g. workup cancellation, transport problems) This contact is for information purposes only and does not fulfill a specific role within WMDA. Only accessible for WMDA members, second contact point that can be contacted by WMDA members in case of emergency (e.g. workup cancellation, transport problem) in case the primary contact does not respond This contact is for information purposes only and does not fulfill a specific role within WMDA. Only accessible for WMDA members, medical director This contact is for information purposes only and does not fulfill a specific role with the WMDA. Only accessible for WMDA members, search coordinator This contact is for information purposes only and does not fulfill a specific role with the WMDA.Organisations identify
Organisations are identified as follows: Function Description Number per registry Access to WMDA Share Cost implications Primary Emergency Contact 1 None None Secondary Emergency Contact 1 None None Organisation Profile Administrator Only accessible for WMDA members, person responsible for maintaining the registry organisation profile page on WMDA Share (address, contact person, operational information, regulatory information). Multiple Has edit rights to organisational profile on WMDA Share. None WMDA registry representative Only accessible for WMDA members, person eligible to serve as the WMDA organisational representative and to vote on behalf of the organisation. 1 Access to WMDA Share Included in WMDA membership fee Medical director 1 None None Search coordinator Multiple None None S(P)EAR alert contact Only accessible for WMDA members, person who will receive the rapid alerts from the S(P)EAR Committee. Multiple None None WMDA member - free of charge Only accessible for WMDA members, persons who are appointed by the registry to serve as a WMDA member (there is a maximum of persons a registry can appoint, based on the number of donors/cord blood units listed). Limited Access to WMDA Share Included in WMDA membership fee Additional WMDA member Only accessible for WMDA members, persons who are appointed by the registry to serve as a WMDA member (above the maximum of persons). Multiple Access to WMDA Share Annual fee WMDA annual report Only accessible for WMDA members, persons who are appointed by the registry to fill in the WMDA Annual Questionnaire. 1 Annual questionnaire web application None Search & Match Registry User Only accessible for WMDA members, person who will have access to the Search & Match Service. Multiple Search & Match Service Each user incurs a fee charged to the registry IT expert for data submission Only accessible for WMDA members, person who is responsible for the data upload to the Search & Match Service. 1 None None
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Permissions
- This page is publicly visible
- Editing is restricted to the organisation profile administrators
- Editing is further restricted on page level to specific persons (record owners)
Information about and for the organisation profile administrator
It is each organisations designated organisation profile administrator's responsibility to ensure all information displayed for their organisation is accurate at all times. By compiling, this resource will be a valuable tool for patients, donors, and organisations worldwide.
Type of Edit | Title of Tables/Page | Action for editing |
Editable by user on page | Operational information, regulatory requirements information and documents | Follow instructions in Helpful Tips document |
Not editable by user on page | Contact details, registry information, affiliated organizations, emergency contact, persons and functions, registry closures on main calendar, CBB survey | Must use ‘Edit’ button found on registry page main page by clicking key symbol in additional resource title |
Any omissions, errors or corrections can be communicated by email to mail@wmda.info
- You can read here helpful tips how to maintain and update your information.
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