This data is publicly available. Parent page : ION-1695
Operational data for Hungarian Stem Cell Donor Registry - ION-1695 | |
|---|---|
| Organisation Overview | |
| The information has been reviewed in year : | |
| Issuing organisation Number (ION) | ION-1695 The Issuing Organisation Number of a organisation, this is globally unique number, as issued by the ICCBBA. |
| Time zone | Europe/Brussels (GMT+01:00) The timezone in which this organisation operates. |
| Business hours | 08:00 AM to 04:00 PM The daily hours in which this organisation operates. |
| Work schedule | Monday - Friday The normal work week in which this organisation operates. |
| Organisation closures | For all organisation closures, please see the WMDA Calendar. |
| Donor ID example | HU123456D ID to be expected on paperwork, samples, and products. |
| Preliminary Search | |
| Requires preliminary search request form | No If yes, form required can be found on the Documents Page. |
| Extended Typing | |
| Typing options available for request | LR HLA-A,B,C,DRB1,DQB1; HR HLA-A,B,C,DRB1,DQB1,DPB1; HR DRB1 with LR C Please note special requirements listed |
| Requires organisation specific typing request form | No If yes, form required can be found on the Documents Page. |
| Number of days donor is reserved for a patient after a request | 14 days after providing results |
| Verification Typing | |
| Maximum blood volume allowed | 50 ml |
| Requires organisation specific typing request form | No If yes, form required can be found on the Documents Page. |
| IDM testing performed at verification | Yes |
| Number of days donor is reserved for a patient after a request | 60 days after shipment of sample. Up to 90 days after receiving CT results upon request of the TC/registry. |
| Sibling Typing | |
| Registry is willing to arrange sibling typings | |
| If yes, procedure to apply for sibling typings | |
| Workup Request | |
| Product dosage limit | Limit based on donor health issues and size, otherwise standard dosage limit. Number of donor cells allowed based on recipient weight. |
| Requires patient to meet certain standards in order to proceed with collection | Yes Organisation may or may not allow donor collections for some patients. |
| Patient physician must report the following in order to proceed with collection | All patient and donor data reported on the Work-Up request and the prescription including 5 loci high resolution HLA Must provide additional information to organisation. |
| Requires organisation specific work up forms | No If yes, form(s) required can be found on the Documents Page. |
| Workup IDM completed 30 days prior to collection | Yes Donor IDM results must be performed within 30 days of collection date to be valid and allow the collection to proceed. |
| Medical Health Questionnaire example available | Yes If yes, the example can be found on the Documents Page. |
| Post-Transplant | |
| Subsequent donation policy | A donor may donate twice HPCs for the same recipient. |
| Anonymous contact allowed | Anonymous patient-donor contact is permitted after the transplantation. |
| Direct contact allowed | Only anonymous patient-donor contact is permitted after the transplantation. |
| Gift exchange allowed | only gifts of low value and without reference to the sender's identity. |
| Cord blood contact allowed | NA |