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Operational data for Gift of Life Marrow Registry - ION-1033 | |
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Organisation Overview | |
The information has been reviewed in year : | |
Issuing organisation Number (ION) | ION-1033 The Issuing Organisation Number of a organisation, this is globally unique number, as issued by the ICCBBA. |
Time zone | America/New_York (GMT-05:00) The timezone in which this organisation operates. |
Business hours | 8:30AM to 5:00PM The daily hours in which this organisation operates. |
Work schedule | Monday to Friday; Available 24/7 via pager for emergencies The normal work week in which this organisation operates. |
Organisation closures | For all organisation closures, please see the WMDA Calendar. |
Donor ID example | ID to be expected on paperwork, samples, and products. |
Preliminary Search | |
Requires preliminary search request form | Yes If yes, form required can be found on the Documents Page. |
Extended Typing | |
Typing options available for request | IR/HR HLA A B C DRB1 DQB1 DPB1 DRB3/4/5; CCR5; On Request: KIR Please note special requirements listed |
Requires organisation specific typing request form | No If yes, form required can be found on the Documents Page. |
Number of days donor is reserved for a patient after a request | 90 total |
Verification Typing | |
Maximum blood volume allowed | 50 ml (more with approval) |
Requires organisation specific typing request form | Yes If yes, form required can be found on the Documents Page. |
IDM testing performed at verification | Yes |
Number of days donor is reserved for a patient after a request | 90 total |
Sibling Typing | |
Registry is willing to arrange sibling typings | |
If yes, procedure to apply for sibling typings | |
Workup Request | |
Product dosage limit | Number of donor cells allowed based on recipient weight. |
Requires patient to meet certain standards in order to proceed with collection | Yes Organisation may or may not allow donor collections for some patients. |
Patient physician must report the following in order to proceed with collection | Minimal Match Requirement: at least a 6/8 match at an antigen level (serologic split) for HLA A, B, C and DR Must provide additional information to organisation. |
Requires organisation specific work up forms | Yes If yes, form(s) required can be found on the Documents Page. |
Workup IDM completed 30 days prior to collection | Yes Donor IDM results must be performed within 30 days of collection date to be valid and allow the collection to proceed. |
Medical Health Questionnaire example available | Yes If yes, the example can be found on the Documents Page. |
Post-Transplant | |
Subsequent donation policy | Donor may donate up to 3 times (max. 2 HPCs) for a recipient. Lifetime max. 2 marrow donations. 2 recipients max. Deviations must be approved by the Medical Director. |
Anonymous contact allowed | Yes |
Direct contact allowed | Yes. 1 year upon mutual agreement |
Gift exchange allowed | No. |
Cord blood contact allowed | N/A |