Table of Contents
If you continue to browse and use this website, you are agreeing to comply with and be bound by the following terms and conditions of use , which together with our privacy policy govern WMDA’s relationship with you in relation to this websiteand with the WMDA Privacy Policy. If you are a registered user or active member of WMDA, your use of the WMDA services is also governed by the Membership Agreement. If you disagree with any part of these terms and conditions, please do not use our services.
The term WMDA (World Marrow Donor Association) or ‘us’ or ‘we’ refers to the owner of the website whose registered office is Schipholweg 5755, 1st floor, unit 2, 2316ZL Leiden, The Netherlands. Our company registration number is 40448326. The term ‘you’ refers to the user or viewer of our website.
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Web-based services provided by WMDA
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The This includes the WMDA website and (https://wmda.info/), all subdomains of wmda.info including the WMDA meeting websites.the website, and other sites as listed below:
- https://wmda.info/: the content of these pages is for your general information and use only. It is subject to change without notice.General information about the organisation
- https://share.wmda.info/: More specific information regarding the content of these pages is for your general information and use only. It is subject to change without notice.
- worldmarrowdonorday.org: the content of these pages is for your general information and use only. It is subject to change without notice.
- education.info: the content of the pages of this e-learning platform is for your general information and use only. It is subject to change without notice. Educational courses are divided into modules, which are finished with an exam. Users have to complete the exam within a defined timeframe with a minimum score in order to obtain a certificate.
- activities of the four WMDA pillars
- https://education.wmda.info/: E-learning platform
- https://searchmatch.wmda.info: Searchable search.wmda.info: service operated on behalf of the WMDA Organisational Members, WMDA creates and operates a searchable database of adult donors and cord blood units available for use in hematopoietic stem cell transplantation. The service is operated based on instructions of the WMDA Organisational Members. Use of the service is part of a search strategy and is only accessible for registered users (staff members of regular and provisional member organisations and authorised transplant centres).
, accessible only for registered users. - https://questionnairedata.wmda.info/: service Service to export global trends data provided by participating organisations
- WMDA meeting websites: Information on upcoming virtual and in-person meetings
- https://worldmarrowdonorday.org/: Information on this annual event acknowledging donors
- https://crm-data.wmda.knack.com/spear#welcome/: service to export data provided by participating organisations.info : Published data for registries
- https://statistics.wmda.info : Statistical information
- https://spear.wmda.info : Reporting system for serious adverse events and reactions by participating organisations
- https://connect.wmda.info/api/ : Registry to registry communication system
The information on some of these sites is subject to change without notice.
Access to WMDA online services
WMDA operates two types of services:
- Public. No user account is needed
- Restricted. A personal user account is needed. MFA is used or will soon be implemented for all WMDA online services.
If you are a Registered User or Active Member of WMDA, your use of the WMDA services is also governed by the Membership Agreement and our Privacy Policy, which can be found on the WMDA website. The right for personal access cannot be transferred, sold or rented to anyone else. Visitors of WMDA services are not allowed to submit sensitive personally identifiable information related to donors, patients, or other individuals who may not be members or users of WMDA or its member registries.
Accuracy of material and provided data
. We reserve the right to suspend or terminate any account that we believe is being used for illegal or unauthorised activities, or any account violating these terms. Please remember that we are not responsible for any breaches of security that occur outside of our platforms.
Account sharing
Sharing of user accounts on any web-based service provided by WMDA is strictly prohibited. Each user must create and maintain their individual account. Users are responsible for maintaining the confidentiality of their account information, including login credentials. Any unauthorised sharing of accounts may result in the suspension or termination of access to the service.
Accuracy and operation of services
We will make every effort to keep WMDA websites current and to correct errors brought to our attention. Documents published on the sites WMDA makes best efforts to keep material on these services up to date and accurate. If general errors, such as editorial errors are detected WMDA makes best efforts to correct them as appropriate. Documents published are as indicated, and sometimes they might not be in the final or formally accepted version.
No specific advice
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WMDA does not warrant the error-free operation of its services. WMDA accepts no responsibility or liability whatsoever with regard to material accessed, operated on or downloaded from its services.
Use of information and resources
Information on WMDA websites is not intended to provide specific advice unless it is stated otherwise.
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Use of material
Neither WMDA nor any person acting on its behalf is responsible for the use that might be made of the information or resources contained in these
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services. Users act at their own risk when using
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information or resources on the websites and they are hereby urged to take necessary precautions when evaluating the usefulness and applicability of
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information or resources for their intended purposes.
Technical errors
In spite of WMDA’s best efforts, sometimes technical errors might occur. WMDA does not warrant the error-free operation of its services. WMDA accepts no responsibility or liability whatsoever with regard to material accessed, operated on or downloaded from its services.
Privacy Policy
The WMDA is committed to user privacy. The WMDA services have been structured so that users have to identify themselves with a username and a password.
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How is personal data obtained?
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Completion of the online membership form requires the submission of personally identifiable information. WMDA will use the information for the purpose of membership administration (e.g., sending WMDA communications including the invoice for services requested). In case of the online learning platform,
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personal information
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What are my rights as the Data Subject?
The Data Subject has the right to the following information about personal data being processed:
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related to participation and test scores are recorded so that the user can pass a course and/or obtain a diploma.
Members' Rights Regarding Personal Data:
- Confirmation as to whether data related to him or her are being processed
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- Information about the purposes of the processing operations, the categories of data concerned, and the recipients or categories of recipients to whom the data are disclosed
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- Communication of the data undergoing processing
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- Knowledge of the logic involved in any decision process concerning the use of
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- personal data.
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Users' Rights Regarding Their Personal Data:
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- Access to information on his or her processed personal data
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- Rectification of any inaccurate or incomplete personal data
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- Withdrawal of consent so that personal data will no longer be processed
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- Request that his or her personal data be completely erased from the WMDA services to which the data has been exported.
Users and viewers also have the right to lodge a complaint with a supervisory authority:
Data Protection Officer
Schipholweg
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55, 1st floor, unit 2
2316ZL Leiden
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, The Netherlands
Important message on data minimisation and security
Unless stated otherwise, visitors to WMDA services are not allowed to submit sensitive personally identifiable information related to donors, patients, or other individuals who may not be members or users of WMDA services or its member registries. See below for specific terms regarding SPEAR and MatchConnect.
Reporting Serious Adverse Events and Reactions (SPEAR) to WMDA
Please note that SPEAR reports may contain privileged and confidential information. It is intended only for the use of the person(s) belonging to the reporting registry and/or their affiliated organisation(s).The data downloaded from the SPEAR online reporting tool remains confidential and should be treated as such. The dissemination, distribution or duplication of the data downloaded from the SPEAR online reporting tool outside of your own registry or organization is therefore prohibited. The WMDA shall not be liable for any indirect, incidental, consequential or punitive damages, whether incurred directly or indirectly, or any loss of data, use, goodwill, or other intangible losses resulting from any content obtained from the SPEAR online reporting tool or due to unauthorized access, use or alteration of downloaded content.
Search, Match & Connect
The Match-Connect service consists of several components. For all components it is not allowed to send information that is not required in order to perform the work that needs to be done on the service. Below we make some specific claims that always count on this platform:
Search & Match Service
URLS: https://searchmatch.wmda.info/ and https://sandbox-search.wmda.info/
In concordance with the general data minimisation principles described above, the following data is never allowed to be entered on this service for a patient or any other person:
- First name
- Last name
- Any reference to the initials
- Any location information regarding where the person lives
Dataupload
URLs: https://dataupload.wmda.info/ and https://staging-dataupload.wmda.info/
In concordance to the general data minimisation principles described above, the following data is never allowed to be entered on this service for a donor or any other person:
- First name
- Last name
- Any reference to the initials
- Any location information regarding where the person lives
Registry-to-registry communication system (connect APIs)
URLs: https://connect.wmda.info/api/ and https://sandbox-connect.wmda.info/api/
Depending on the messages being exchanged on this system, there may be differences in the level of personally identifiable information required in order to allow for successful and useful information exchange. Always make sure that the receiving organisation absolutely requires this information at this stage of the communication. If the receiving registry does not require the information, it should not be sent.
Data retention
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The Data Subject also has the right to lodge a complaint with a supervisory authority. For further information please see Privacy Policy via the link mentioned above.
Copyright
Whilst content may be accessed, downloaded and used, visitors are not allowed to
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publish any material from these websites for public consumption without permission.
Links to other websites
These websites
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include links to other websites. These links are provided for your convenience to provide further information
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. We have no responsibility for the content of
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any linked website(s).
Use of cookies
We use cookies
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to enhance your user experience. By clicking the accept button
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, you are giving your consent
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to
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the use of cookies.
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Amendments
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WMDA is free to unilaterally change the membership Terms and Conditions of Use without giving further notice to the individual member or user. Such changes will, unless otherwise stated, take immediate effect . WMDA will publish changes to the Terms and Conditions on its website. However, members and will be published on WMDA Share, in the "Stem Cell Matters" newsletter and on the web sites of the relevant WMDA online services. Members or users are responsible for keeping themselves updated in relation to any changes to the Terms and Conditionsof Use.
Governing law and jurisdiction
These Terms and Conditions of Use and any dispute or claim relating to the Terms and Conditions or the Services of Use or the services provided by the WMDA website are governed by and construed in accordance with the laws of the The Netherlands. Any dispute arising out of, or related to, these Terms and Conditions of Use or the Servicesservices, whether contractual or arising from an unlawful act, must be brought exclusively brought before the courts of The Hague in the The Netherlands.
Contact Us
Your access to and use of the Services services is conditioned on your acceptance of and compliance with these Terms. These Terms apply to members, users and others who access or use our Servicesservices. If you have any questions about these Terms & Conditionsof Use, please contact the WMDA office by email mail@wmda.info.