If you continue to browse and use this website, you are agreeing to comply with the following terms and conditions of use and with the WMDA Privacy Policy. If you are a registered user or active member of WMDA, your use of the WMDA services is also governed by the Membership Agreement. If you disagree with any of these terms and conditions, please do not use our services.

The term WMDA (World Marrow Donor Association) or ‘us’ or ‘we’ refers to the owner of the website whose registered office is Schipholweg 55, 1st floor, unit 2, 2316ZL Leiden, The Netherlands. Our company registration number is 40448326. The term ‘you’ refers to the user or viewer of our website.

Web-based services provided by WMDA

This includes the WMDA website (https://wmda.info/), all subdomains of the website, and other sites as listed below:

• https://wmda.info/: General information about the organisation
• https://share.wmda.info/: More specific information regarding the activities of the four WMDA pillars
• https://education.wmda.info/: E-learning platform
• https://searchmatch.wmda.info: Searchable database of adult donors and cord blood units for hematopoietic stem cell transplantation, accessible only for registered users.
• https://questionnaire.wmda.info/: Service to export global trends data provided by participating organisations
• WMDA meeting websites: Information on upcoming virtual and in-person meetings
• https://worldmarrowdonorday.org/: Information on this annual event acknowledging donors
• https://crm-data.wmda.info : Published data for registries
• https://statistics.wmda.info : Statistical information
• https://spear.wmda.info : Reporting system for serious adverse events and reactions by participating organisations
• https://connect.wmda.info/api/ : Registry to registry communication system

The information on some of these sites is subject to change without notice.

Access to WMDA online services

WMDA operates two types of services:

• Public. No user account is needed
• Restricted. A personal user account is needed. MFA is used or will soon be implemented for all WMDA online services. 

The right for personal access cannot be transferred, sold or rented to anyone else. We reserve the right to suspend or terminate any account that we believe is being used for illegal or unauthorised activities, or any account violating these terms. Please remember that we are not responsible for any breaches of security that occur outside of our platforms.

Account sharing

Sharing of user accounts on any web-based service provided by WMDA is strictly prohibited. Each user must create and maintain their individual account. Users are responsible for maintaining the confidentiality of their account information, including login credentials. Any unauthorised sharing of accounts may result in the suspension or termination of access to the service.

Accuracy and operation of services

We will make every effort to keep WMDA websites current and to correct errors brought to our attention. Documents published on the sites might not be in the final or formally accepted version. WMDA does not warrant the error-free operation of its services. WMDA accepts no responsibility or liability whatsoever with regard to material accessed, operated on or downloaded from its services.

Use of information and resources

Information on WMDA websites is not intended to provide specific advice unless it is stated otherwise. Neither WMDA nor any person acting on its behalf is responsible for the use that might be made of the information or resources contained in these services. Users act at their own risk when using information or resources on the websites and they are hereby urged to take necessary precautions when evaluating the usefulness and applicability of information or resources for their intended purposes.

Privacy Policy

The WMDA is committed to user privacy. The WMDA services have been structured so that users have to identify themselves with a username and a password. Completion of the online membership form requires the submission of personally identifiable information. WMDA will use the information for the purpose of membership administration (e.g., sending WMDA communications including the invoice for services requested). In case of the online learning platform, personal information related to participation and test scores are recorded so that the user can pass a course and/or obtain a diploma.

Members' Rights Regarding Personal Data:

1. Confirmation as to whether data related to him or her are being processed
2. Information about the purposes of the processing operations, the categories of data concerned, and the recipients or categories of recipients to whom the data are disclosed
3. Communication of the data undergoing processing
4. Knowledge of the logic involved in any decision process concerning the use of personal data.

Users' Rights Regarding Their Personal Data:

1. Access to information on his or her processed personal data
2. Rectification of any inaccurate or incomplete personal data
3. Withdrawal of consent so that personal data will no longer be processed
4. Request that his or her personal data be completely erased from the WMDA services to which the data has been exported.

Users and viewers also have the right to lodge a complaint with a supervisory authority:

Data Protection Officer
Schipholweg 55, 1st floor, unit 2
2316ZL Leiden, The Netherlands

Important message on data minimisation and security

Unless stated otherwise, visitors to WMDA services are not allowed to submit sensitive personally identifiable information related to donors, patients, or other individuals who may not be members or users of WMDA services or its member registries. See below for specific terms regarding SPEAR and MatchConnect.

Reporting Serious Adverse Events and Reactions (SPEAR) to WMDA

Please note that SPEAR reports contain privileged and confidential information intended only for the use by individuals currently employed by the reporting registry and/or their affiliated organisation(s). Data downloaded from the SPEAR online reporting service is confidential and should be handled accordingly. Disseminating, distributing or duplicating data from the SPEAR online reporting service outside of your own registry or organisation is prohibited. WMDA shall not be liable for any indirect, incidental, consequential or punitive damages, whether incurred directly or indirectly, or any loss of data, use, goodwill, or other intangible losses resulting from any content obtained from the SPEAR online reporting service or due to unauthorized access, use or alteration of downloaded content.

Each reporting organisation is responsible for ensuring that only authorized personnel have access to the service, including timely communication of any personnel changes to maintain access security. Login details must not be shared under any circumstances (see 'Account sharing' above).

Search, Match & Connect

The Match-Connect service consists of several components. For all components it is not allowed to send information that is not required in order to perform the work that needs to be done on the service. Below we make some specific claims that always count on this platform:

Search & Match Service

URLS: https://searchmatch.wmda.info/ and https://sandbox-search.wmda.info/

In concordance with the general data minimisation principles described above, the following data is never allowed to be entered on this service for a patient or any other person:

• First name
• Last name
• Any reference to the initials
• Any location information regarding where the person lives

Dataupload

URLs: https://dataupload.wmda.info/ and https://staging-dataupload.wmda.info/

In concordance to the general data minimisation principles described above, the following data is never allowed to be entered on this service for a donor or any other person:

• First name
• Last name
• Any reference to the initials
• Any location information regarding where the person lives

Registry-to-registry communication system (connect APIs)

URLs: https://connect.wmda.info/api/ and https://sandbox-connect.wmda.info/api/

Depending on the messages being exchanged on this system, there may be differences in the level of personally identifiable information required in order to allow for successful and useful information exchange. Always make sure that the receiving organisation absolutely requires this information at this stage of the communication. If the receiving registry does not require the information, it should not be sent.

Data retention

Copyright

Whilst content may be accessed, downloaded and used, visitors are not allowed to publish any material from these websites for public consumption without permission.

Links to other websites

These websites include links to other websites. These links are provided for your convenience to provide further information. We have no responsibility for the content of any linked website(s).

Use of cookies

We use cookies to enhance your user experience. By clicking the accept button, you are giving your consent to the use of cookies.

Amendments

WMDA is free to unilaterally change the Terms of Use without giving further notice to the individual member or user. Such changes will, unless otherwise stated, take immediate effect and will be published on WMDA Share, in the "Stem Cell Matters" newsletter and on the web sites of the relevant WMDA online services. Members or users are responsible for keeping themselves updated in relation to any changes to the Terms of Use.

Governing law and jurisdiction

These Terms of Use and any dispute or claim relating to the Terms of Use or the services provided by the WMDA website are governed by the laws of The Netherlands. Any dispute arising out of, or related to, these Terms of Use or the services, whether contractual or arising from an unlawful act, must be brought exclusively before the courts of The Hague in The Netherlands.

Contact Us

Your access to and use of the services is conditioned on your acceptance of and compliance with these Terms. These Terms apply to members, users and others who access or use our services. If you have any questions about these Terms of Use, please contact the WMDA office by email mail@wmda.info.

Introduction

The WMDA is a non-profit association organised under the laws of The Netherlands, having its registered office at Schipholweg 55, 1st floor, unit 2, 2316 ZL, The Netherlands. 

Considerations

• You are an individual who is interested in the field of haematopoietic stem cell donation and transplantation and wish to benefit from the informational and educational activities of WMDA on the basis of a financial contribution (membership fee) and, to that end, become a member of WMDA.
• In order to become a member, you are requested to supply WMDA with certain personal information via an online application form. Information marked with an asterisk (*) is mandatory; all other information is optional.
• By completing the application form, you state that all information supplied by you or somebody instructed by you on your behalf is true and correct.
• By completing the application form, you also agree to engage in professional online conduct towards WMDA and its members by refraining from sending unsolicited messages to groups of other website users, and by respecting intellectual property rights owned by WMDA and third parties.
• By completing the application form, you agree to pay the required membership fee. An annual membership covers January 1 till December 31 and is renewable each membership year.
• The annual membership fee is communicated via the WMDA website and by email and is due in January at the start of the new membership year. After April 1, the grace period for current members comes to an end and all non-renewed accounts are voided of their membership benefits.
• Any change in the membership fee as adopted by the WMDA General Assembly will be communicated via the WMDA website and by email.
• After submitting the application form to WMDA, your application will be reviewed. If approved, a confirmation letter will be sent to you, including the request to complete your membership payment. Once you have completed the payment online or via bank transfer and WMDA has received the payment of your membership fee, your membership and your access to the member benefits will be activated.

Member Rights and Obligations

Healthcare Affiliated Professionals & Honorary Members

WMDA requests you to supply (and where needed, to update) the following information:

• Name, address and contact details
• Gender, title preferred
  
• Job title
  

It is the member’s responsibility at all times to keep personal information up to date. WMDA is not responsible for verifying or updating any of the information. Additional personal information may be requested to help identification, communication, or qualification for specific activities.

Organisations

Organisational wish to benefit from the informational and educational activities of WMDA on the basis of a financial contribution. 

• Name, address and contact details;

• Information about the organisation in order to be able to list donors and/or cord blood units for international search;
  

• Name and address of the proposed representative;

• Name and contact details of persons who will get access to the WMDA services and that will be registered as WMDA individual member.
  

It is the responsibility of the member organisation to keep their personal information up to date. WMDA is not responsible for verifying or updating any of the information. Additional personal information may be requested to help identification, communication, or qualification for specific activities. 

All WMDA members have the right to nominate candidates for elections. 

Individual and Organisational members must pay an annual contribution fee, the amount and the conditions of which will be approved by the General Assembly. Honorary members are exempt from paying contributions. 

WMDA Obligations

WMDA shall have the following obligations during the term of this Agreement:

• WMDA will use its best efforts to act according to WMDA Articles of Association and the European General Data Privacy Regulations when processing personal data of members.
• The Association will protect the personal data provided in the membership registration form and thereafter, and will use its best efforts to prevent unlawful sharing of personal data with third parties if this is not essential to the execution of the membership benefits or other core business of the Association;
• The Association will set up or establish processors’ agreements with all third parties that need access to membership data;
• In case of a data breach, including hacking or loss of data, WMDA will, according to the General Data Privacy Regulations (GDPR), inform members of this within 72 hours;

Term and Termination

Membership is terminated:

• By written notification of termination by the member to the WMDA office;

• On the death of an Individual or Honorary member or on the dissolution of a member.

For a more detailed overview of grounds for termination of Membership please see Articles of Association.

Applicable law

This agreement shall be governed by the laws of The Netherlands. Any dispute that may arise shall be submitted to the exclusive jurisdiction of the courts in Den Haag, The Netherlands.

Other

• This Agreement and the obligations of WMDA and the member may not be assigned, transferred or delegated by one party without prior written consent of the other parties;
• WMDA may conduct surveys about issues that are of interest to WMDA or the professional field of haematopoietic stem cell donation and transplantation. The respondent’s data provided in such surveys shall remain anonymous and will be treated confidentially unless specified in the survey;
• WMDA may perform statistical analysis of website traffic and response to product offers in order to improve its services. Statistical information arising from such statistical analysis shall not be reducible to individual users;
• WMDA may perform statistical analysis of information submitted by members (e.g., renewal rate, congress attendance) in order to develop and further improve services to our members;
• WMDA is the sole owner of the WMDA website and is therefore the sole owner of any data collected through the WMDA website, notwithstanding the applicant’s individual rights under this agreement.

Any queries related to this agreement may be directed towards the WMDA office, Schipholweg 55, 1st floor, unit 2, 2316ZL Leiden, +31 (0) 88 505 7900, mail@wmda.info