In adherence to the principles of transparency, accountability, and privacy, the World Marrow Donor Association (WMDA) has established a comprehensive Data Retention Policy as an integral component of its Terms of Use. This policy outlines the guidelines and procedures governing the retention, storage, and disposal of user data collected through the WMDA platform.
Purpose of Data Retention:
The primary objective of data retention within the WMDA framework is to facilitate the efficient operation of the organization's services and to support its mission of connecting donors and patients worldwide. Retained data is utilized for communication, research, and statistical analysis aimed at enhancing the effectiveness of the global bone marrow donor registry.
Types of Retained Data:
WMDA may collect and retain various types of user data, including but not limited to personal information, medical records, communication history, and donor/patient matching details. The organization ensures that the collection and retention of such data are conducted in compliance with relevant data protection regulations.
Retention Period:
Data will be retained for a period deemed necessary for the fulfillment of WMDA's operational objectives, legal obligations, and the provision of ongoing services. The retention period may vary based on the nature of the data, its relevance, and the applicable legal requirements.
Security Measures:
WMDA employs state-of-the-art security measures to safeguard the stored data against unauthorized access, disclosure, alteration, or destruction. The organization is committed to maintaining the confidentiality and integrity of user information, utilizing encryption, access controls, and regular security assessments.
Access and Rectification:
Users have the right to access their personal data stored by WMDA and rectify any inaccuracies. The organization will provide mechanisms for users to review and update their information, ensuring that the data retained remains accurate and up-to-date.
Data Disposal:
Upon expiration of the designated retention period or upon request for deletion by the user (where applicable), WMDA will systematically dispose of data in a secure and irreversible manner. This process will adhere to industry best practices and legal requirements to ensure the permanent removal of user information from WMDA's systems.
Compliance with Applicable Laws:
The data retention practices of WMDA will consistently align with the requirements of relevant data protection laws and regulations, ensuring a legal and ethical framework for the collection, storage, and processing of user data.
By adhering to this Data Retention Policy, WMDA aims to balance the necessity of retaining information for operational purposes with the commitment to safeguarding user privacy and maintaining the highest standards of data protection. This policy is subject to periodic review and updates to align with evolving legal standards and organizational needs. Users are encouraged to review this policy regularly to stay informed about how their data is managed within the WMDA ecosystem.