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Operational data for DKMS Registry - ION-4596 | |
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Organisation Overview | |
The information has been reviewed in year : | |
Issuing organisation Number (ION) | ION-4596 The Issuing Organisation Number of a organisation, this is globally unique number, as issued by the ICCBBA. |
Time zone | Europe/Amsterdam (GMT+01:00) The timezone in which this organisation operates. |
Business hours | 8:00 AM to 5:00 PM The daily hours in which this organisation operates. |
Work schedule | Monday - Friday The normal work week in which this organisation operates. |
Organisation closures | 1st January, 6th January, 1st May, 3rd October, 1st November, 24th December, 25th December, 26th December, 31st December For all organisation closures, please see the WMDA Calendar. |
Donor ID example | Only GRID is used for communication. ID to be expected on paperwork, samples, and products. |
Preliminary Search | |
Requires preliminary search request form | No If yes, form required can be found on the Documents Page. |
Extended Typing | |
Typing options available for request | Standard: HLA-A, -B, -C, -DRB1, -DQB1, -DPB1; Upon request: HLA-DRB3/4/5, -DQA1, -DPA1, KIR, CCR5, HLA-E and MICA/-B Please note special requirements listed |
Requires organisation specific typing request form | No If yes, form required can be found on the Documents Page. |
Number of days donor is reserved for a patient after a request | No reservation after Extended Typing request. |
Verification Typing | |
Maximum blood volume allowed | 50 ml |
Requires organisation specific typing request form | No If yes, form required can be found on the Documents Page. |
IDM testing performed at verification | Yes |
Number of days donor is reserved for a patient after a request | 90 days |
Sibling Typing | |
Registry is willing to arrange sibling typings | Yes |
If yes, procedure to apply for sibling typings | Send documents to familydonors@dkms.org |
Workup Request | |
Product dosage limit | PBSC: CD 34+ 5x10^6/kg bodyweight recipient; BM: TNC 3-5 x 10^8/kg bodyweight recipient or 20 ml bone marrow / kg bodyweight of the donor max. 1500 ml Number of donor cells allowed based on recipient weight. |
Requires patient to meet certain standards in order to proceed with collection | Yes Organisation may or may not allow donor collections for some patients. |
Patient physician must report the following in order to proceed with collection | For compasionate therapy an ethical review board approval is required and the medical advisor need to approve it. Patient must be less than 85 years old. Must provide additional information to organisation. |
Requires organisation specific work up forms | No If yes, form(s) required can be found on the Documents Page. |
Workup IDM completed 30 days prior to collection | Yes Donor IDM results must be performed within 30 days of collection date to be valid and allow the collection to proceed. |
Medical Health Questionnaire example available | If yes, the example can be found on the Documents Page. |
Post-Transplant | |
Subsequent donation policy | Subsequent donation requests have to be approved by our medical advisors. For more information please see DKMS Operational User Guide. |
Anonymous contact allowed | Anonymous patient-donor contact is permitted after the transplantation. |
Direct contact allowed | Allowed at the earliest two years after transplantation or one year after a second donation, if patient and donor agree and sign a declaration of consent. |
Gift exchange allowed | Yes, one gift per donor or recipient. No waiting period post transplant, value max 20€ |
Cord blood contact allowed | n/a |